March 15, 2017

Canadian Expert Consensus Published to Guide Optimal Management of ADPKD

The PKD Foundation of Canada is pleased to share that a Canadian consensus has been published by nephrologists across the country. This consensus aims to give nephrologists evidence-informed recommendations to guide optimal management of adult patients with autosomal dominant polycystic kidney disease (ADPKD).

ADPKD is the most common inherited renal disorder worldwide, impacting approximately 35,000–66,000 Canadians. An estimated 45% to 70% of patients with ADPKD progress to end-stage renal disease by age 65 years.

“This consensus is quite promising for Canadian ADPKD patients, due to the new and updated treatment options available for the first time,” says Jeff Robertson, Executive Director of the PKD Foundation of Canada. “This document represents a significant step forward in improving patient care.”

The areas of focus for the expert consensus are the role of genetic testing, the role of renal imaging, predicting the risk of disease progression, and treatment options for ADPKD.

“We are optimistic about the potential impact this consensus can have on improving ADPKD patient care,” says Dr. Soroka, lead author of the Canadian expert consensus and Halifax nephrologist. “Although these recommendations are for healthcare providers, a key message that is important for patients and families with ADPKD, is that referral to a nephrologist after diagnosis is imperative to determine what the best options are for treatment.”

Click here to access the full expert consensus published by the Canadian Journal of Kidney Health and Disease. Those who may have questions about this consensus, or have not been seen by a nephrologist in the last two years, should speak with their primary care provider about a referral back to a nephrologist.