News
February 01, 2016

January 2016 PKD e-News

LEARN  

Full Video Recording of the 2015 Canadian PKD Symposium is Available Online

This past November, the PKD Foundation of Canada hosted our 2nd Canadian PKD Symposium in Toronto ON.  The event was open to the public and included participants from the PKD medical community and various renal healthcare centres, as well as PKD patients, their families and loved ones.

Topics included:

  • Eating Healthy with PKD
  • Learn the Facts: The Basics of ARPKD & ADPKD
  • Understanding Living Kidney Donation
  • Update on Canadian Clinical PKD Research
  • Dealing with the Emotional Aspects of Living with a Chronic Disease

Whether you were unable to join us for the day, or wish to revisit one of the presentations from our world-renowned keynote speakers, we know you will find this recording of great value.

You can also check out pictures from the 2015 Canadian PKD Symposium here!

PKD Foundation of Canada Lower Mainland Chapter and Kidney Foundation of Canada B.C & Yukon Branch Joint Volunteer Training Session: February 6th & 7th – Richmond BC

We are excited to partner with the Kidney Foundation of Canada BC and Yukon Branch for this 2-day educational session that will help PKD and CKD patients learn to share their stories with the media and local government officials, while also addressing the critical need for organ and tissue donation awareness.

For an overview of the 2-day agenda, click here! All other details can be found here.

If you do wish to attend these training sessions, we ask that you RSVP by emailing us at endpkd@endpkd.ca no later thanWednesday, February 3rd.

We look forward to working with the KFOC BC and Yukon Branch as we strengthen PKD and CKD advocacy across British Columbia!

PKD Health Notes with Renal Dietician, Kelly Welsh: What to Look for on the Nutrition Facts Label

Understanding nutrition labels can be tricky when following a kidney-conscious diet. Key items for people with kidney disease to watch for on a food label may include, but are not limited to: sodium, protein, potassium and phosphorus.

In this month’s PKD Health Notes blog, Kelly helps us to better understand what we should be looking for. Click here for the full post.


AWARENESS 

Save the Date: 2nd Annual Hamilton Chapter HOPe for a Cure 

When: Saturday, March 5thfrom 6:00pm – 11:30pm

Where:  The Germania Club of Hamilton, 863 King Street East, Hamilton ON

Join us for an Italian themed dinner and live swing era music featuring the Jumpin’ Jive Band!

Tickets are $25 in advance and $30 at the door.

There are tons of amazing items up for grabs through the silent auction and 100% of the proceeds go directly towards critical Canadian research of polycystic kidney disease!

Online tickets are available here! For all other details, click here.

Become a PKD Champion and Join a PKD Foundation of Canada Chapter Today

PKDFOC Volunteer LogoThe PKD Foundation of Canada’s mission is to promote programs of research, advocacy, education, support and awareness, in order to discover treatments and a cure for PKD. Our Chapters, led by volunteer Chapter Coordinators, are a driving force behind our mission and help us to create invaluable awareness of PKD on a local and national level.

If you are interested in joining an existing Chapter or starting a new one in your local community, click here or contact us atendpkd@endpkd.ca / 1-877-410-1741.

There are opportunities of all shapes and sizes waiting for you! We hope you will help us continue to make a positive impact in the PKD community by joining us in the fight to end PKD.


SUPPORT

Thank You for an Incredible Walk for PKD Season

This past Fall,  850+ pairs of shoes walked to end PKD, 5 million steps were taken to end PKD and over $165,000 was raised to end PKD! For that we thank you!

The money you raised this season will give hope to millions of people affected by this life-threatening genetic disease. With money raised from past Walk for PKD events, we have been able to dramatically increase critical research here in Canada; bringing us closer than ever to discovering a treatment for PKD. Without your support, this would not have been possible.

We wish to give a huge thanks to all of our dedicated Walk and Chapter Coordinators, key volunteers, our most generous corporate and in-kind sponsors, as well as each and every participant and donor who helped to make these events truly unforgettable.

You can check out pictures from our 2015 Walk for PKD campaign on our official Facebook page.

We look forward to seeing you all again in September!