News
June 01, 2016

June 2016 PKD e-News

SUPPORT  

Register Today for the 2016 Walk for PKD!

The Walk for PKD signifies a united group, moving towards treatments and a cure for polycystic kidney disease (PKD), one of the most common life-threatening genetic diseases affecting thousands in Canada.  You can make an impact on this devastating disease by joining a Walk in your community, or creating a virtual Walk page.
Registration is easy! 
Visit endpkd.ca/walkforpkd to find a Walk near you!  Choose whether you would like to participate as a team or register as an individual.
Register Now!
After registering online, you can take advantage of features like:
  • creating a personal fundraising page to track dollars raised
  • tools to email family, friends and colleagues
  • making your kickoff gift online
Why Walk?

The Walk for PKD is the PKD Foundation of Canada’s signature fundraising event, raising more than $853,000 since 2007.  This has helped move us closer to finding treatments.  Funds raised help provide education and support services, both online and in local communities.

We’ve made great strides but need your help in keeping the momentum going. We know we can exceed the $168,000 raised last year by recruiting more participants and engaging every walker in fundraising.  With your help, we can look forward to a time when no one will have to suffer the full effects of PKD.  Sign up today and help us END PKD!

 

Even if you are unable to attend the Walk for PKD or don’t have an event in your area, you can still make an incredible impact in raising awareness and funds for critical PKD research!  By making a personal donation, your efforts will help strengthen the direct funding of the PKD Foundation of Canada’s mission to promote programs of research, advocacy, education, support and awareness in order to discover treatments and cure for PKD and improve the lives of all it affects!

 

Remember – every dollar raised brings us that much closer to the ultimate finish line:  A cure for PKD! 

 

If you have any questions regarding the 2016 Walk for PKD, please do not hesitate to contact us either by phone at 1-877-410-1741 or by email at endpkd@endpkd.ca.

 

Upcoming Hamilton Chapter 5th Anniversary Party
When: July 10th from 2:00pm-4:00pm
Where: Barangas on the Beach, 380 Van Wagner Road, Hamilton ON  L8E 3L8
Enjoy a relaxing afternoon together marking the Hamilton Chapter’s milestone of providing informational support meetings and helping to raise awareness about polycystic kidney disease and funds for Canadian PKD research.
We will provide light finger foods and cake to celebrate the occassion, and there will be a cash bar available for you to purchase beverages.
To RSVP, please email the Hamilton Chapter here, or call 1-877-410-1741.
You can also visit the event page here for additional details.

LEARN   

 
Upcoming Ottawa Chapter Meeting

Topic: What’s new in PKD research
Speaker: Dr.  Ahsan Alam, MDCM, FRCP (C), Assistant Professor of Medicine at McGill University and nephrologist at the Royal Victoria Hospital
When: Wednesday, July 20 2016 from 6:30pm-8:30pm
Where: Ben Franklin Place, Room 1A – 101 Centerpointe Drive, Nepean ON
Join us as Dr. Ahsan Alam shares with our group various ways to manage one’s PKD diagnosis, from diet and exercise to pain management and formal monitoring. He will also discuss current therapeutic treatment options, and what future treatment options may become available down the road.

 

For full details, click here.
 
PKD Health Notes with Renal Dietician, Kelly Welsh:
Tips to Stay Healthy This Summer

“Not sure how your summer is shaking out, but if you are like me, my weeks seem to be filled with all sorts of summer shindigs! Holidays, parties, baseball games, festivals, fairs, picnics and backyard get-togethers are abundant. All this fun can be very stressful to those of us trying to monitor our kidney diets and make the healthiest choices possible. Keeping in mind, even just a few of the tips below can help take the stress out, and place your focus on the enjoyment of summer, while keeping you healthy and at your very best.”

AWARENESS 

Meet ARPKD Warrior, ‘Hurricane Harrison’

Harrison was diagnosed with autosomal recessive polycystic kidney disease (ARPKD) before he was born. His dad, a teacher and illustrator, has found artistic inspiration in his tough little boy, who the family calls Hurricane Harrison.

Today, he has defied the odds stacked against him, but there’s still a long road ahead. More treatment options will be needed for Harrison as his PKD progresses.
Watch his story to find out how you can help children like Harrison.