March 2017 PKD e-News
Upcoming PKD Patient Forums in Halifax and St. John's! If you, your family or loved ones live in either of these cities, join us and members of the local PKD community to learn more about PKD and what resources are available in Canada.
Upcoming FREE PKD Patient Forums in Halifax and St. John's
Patients and their loved ones are invited to join this forum to:
- Learn about what a PKD diagnosis can mean for you or a loved one, as well as how PKD can be managed from Dr. Steven Soroka, Nephrologist, Nova Scotia Health Authority;
- Hear about what resources and support systems are available to you and your loved ones from Jeff Robertson, Executive Director, PKD Foundation of Canada;
- Have your questions answered during a Q&A period led by Dr. Soroka and Jeff Robertson; and
- Meet other people living with PKD in your community.
All are welcome to attend! Click here for details and to secure your place.
Upcoming Toronto Chapter Meeting
PKDFOC Holds 2nd PKD Advocacy Day at Queen's Park
April is BeADonor Month for Ontario Residents!
PKDFOC Launches New Podcast: PKD Talks
We are very excited to share the pilot episode of our brand new PKD podcast, PKD Talks.
Upcoming Hamilton Chapter Fundraiser: HOPe for a Cure
This family-friendly night on the town will include:
- Live swing era music by the Jumpin' Jive Band.
- Lindy hop swing dance lesson care of The Hammer Hoppers.
- A fantastic silent-auction.
Limited tickets available: $20 in advance or $25 at the door. Purchase your tickets online here.
Upcoming Montréal Chapter Fundraiser: Music Heals
Date: Sunday, May 28, 2017
Time: 2:00 pm to 5:00 pm
Place: Rialto Theatre, 5723 Av du Parc, Montréal, QC H2V 4G9
The PKD Foundation of Canada - Montréal Chapter proudly presents the 2nd annual Music Heals benefit concert in support of critical Canadian research for PKD. Talented artists from Montréal will perform a variety of musical genres and ethnic groups will reveal the beauty of their heritage through song and dance.
PKD Advocate Video: Meet Elyse Gawley
New Blog Post: PKD Will Not Beat Me - To have or not to have kids
"Some people dream of having kids from a young age; they know how many children they want and plan their pregnancies accordingly. Others may become pregnant unexpectedly or may choose an independent lifestyle with no children. Then there are people whose lives and health lead them down a path where childbearing isn't possible or maybe just isn't meant to be. I fall into the latter category and I'm at peace with this because it is ok to be different and not conform to a standard." Read the full post.
PKD Will Not Beat Me is an inspirational place for those seeking a positive environment to meet others with polycystic kidney disease (PKD) - to share stories, to ask questions and to make life-long friendships, encouraging each other to live positively along the way! PKD Will Not Beat Me is written by PKD patient and transplant recipient Valen Keefer.