October 2016 PKD e-News
Upcoming Western Canada PKD Patient Forums
The PKDFOC will be hosting three FREE PKD Patient Forums in Western Canada! If you, your family or loved ones live in the Edmonton, Calgary or Vancouver area, join us and members of the local PKD community to learn more about PKD and what resources are available in Canada!
Patients and their loved ones are invited to join this forum to:
- Learn about what a PKD diagnosis can mean for you or a loved one, as well as how PKD can be managed
- Hear about what resources and support systems are available to you and your loved ones from Jeffrey Robertson, Executive Director, PKD Foundation of Canada;
- Have your questions answered during a Q&A period; and
- Meet other people living with PKD in your community.
All are welcome to attend!
To RSVP and confirm your participation in one of the following events, click here!
Recent study finds that ADPKD patients face elevated risk of diabetes after a kidney transplant
The Canadian Journal of Diabetes reports a detailed analysis of 12 studies, which comprised 1,379 patients with ADPKD of a total of 9,849 patients who had undergone kidney transplants and found that individuals with ADPKD who undergo a kidney transplant have a higher association of new -onset diabetes than non-ADPKD kidney transplant patients. These findings may impact disease management of ADPKD before transplant and follow up after transplant.
PKD Foundation Scientific Advisory Committee member, Dr. Ronald Perrone, M.D. commented, "In light of this study, the advice I have for patients is that maintaining a healthy diet and healthy weight both before and after transplant are key to avoiding an increased risk of type 2 diabetes".
Read a synopsis of the paper here.
PKD Health Notes: Tips for Halloween
With Halloween this evening, we'd like to remind you of some helpful tips to keep in mind during this sweet-filled holiday. When it comes to pacing your candy and treat intake, remember the age-old saying, "Everything in moderation." Staying nutrition-conscious can be difficult around this time of year, but there are things you can do to help ease the temptation to overindulge.
Read the full blog post here.
Meet Laura and Amber Barton
Laura and Amber Barton were both diagnosed with autosomal dominant polycystic kidney disease (ADPKD) as teenagers.
Growing up with a mom affected by ADPKD, they always knew they had a chance of inheriting the disease themselves, and are grateful they have each other for support.
Learn more about Laura and Amber here.
Join in the online conversation and help end PKD
These are great ways to keep up-to-date on everything happening in the PKD community on a global level! Be sure to share our pages with your friends and family too! It's a fast and easy way to help spread invaluable PKD awareness online.
Upcoming Hamilton Chapter Fall Coffee Social
Date: Sun. September 2nd, 2016
Place: William's Fresh Cafe, 47 Discovery Drive, Hamilton ON. (free parking)Time: 2:00 pm - 4:00 pm
Join the PKD Foundation of Canada Hamilton Chapter for an opportunity to catch up with old friends and to make new ones from the local PKD community! This is a great chance to talk about what PKD means to you, hear other people's stories, and to ask any questions you may have.
You will also hear from Hamilton Chapter Coordinator, Joy Pekar, on what the Chapter has in store for 2017, both from an educational and fundraising standpoint.
Patients, family members and care-givers are all welcome!
For more details, click here.
New blog post: PKD Will Not Beat Me - "Listen to Your Body"
"In life, we are often encouraged to follow our heart and listen to our gut. It simply means to trust our intuition. I believe this is a big component of caring for ourselves and making wise health decisions. After living with medical issues for so long, we become very in tune with our bodies. As PKD patients, we learn what kidney pain feels like, if we are having a cyst bleed or need to go to the emergency room. It is important to listen to our bodies and know when we need to see our doctor or go to the hospital. For transplant recipients, these decisions can mean life or death."
Read Valen's full blog post here.
PKD Will Not Beat Me is an inspirational place for those seeking a positive environment to meet others with polycystic kidney disease (PKD) - to share stories, to ask questions and to make life-long friendships, encouraging each other to live positively along the way! PKD Will Not Beat Me is written by PKD patient and transplant recipient Valen Keefer.
Become a PKD Champion and Join a PKD Foundation of Canada Chapter Today
The PKD Foundation of Canada's mission is to promote programs of research, advocacy, education, support and awareness, in order to discover treatments and a cure for PKD. Our Chapters, led by volunteer Chapter Coordinators, are a driving force behind
If you are interested in joining an existing Chapter or starting a new one in your local community, click here or contact us at email@example.com / 1-877-410-1741. our mission and help us to create invaluable awareness of PKD on a local and national level.
There are opportunities of all shapes and sizes waiting for you! We hope you will help us continue to make a positive impact in the PKD community by joining us in the fight to end PKD.