Hello World! My name is Matan and I am the Toronto Chapter Coordinator for the PKD Foundation of Canada. I was diagnosed with PKD 13 years ago, after progressively worse flank pain led me to seek medical attention. Heading up our Toronto Chapter allows me to redirect my energy into helping others affected by PKD. It helps me forget about my challenges, and focus on leaving my community a bit better, day by day.
As a PKD patient, I feel blessed, because some of the world’s top scientists are fighting for our cause. With many studies currently underway, I believe the future of PKD is very promising for patients. Our Toronto Chapter understands the importance of continued research, advocacy and education on PKD, and strives to grow our community with the help of dedicated volunteers.
PKD patients can reach out to me at any time and for any reason at firstname.lastname@example.org. Our Toronto Chapter is looking forward to implementing even more educational and social events this year. We aim to consistently improve the help we deliver to our community, and the value we deliver to our PKD patients. Thank you for your support!
The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community, driving vital programs around the world. They are made up of groups of volunteers – PKD patients, family members and friends just like you!
We are pleased to share some encouraging news regarding the treatment landscape for those living with ADPKD. Today, Otsuka announced results from their Phase 3 REPRISE trial of tolvaptan in patients with autosomal dominant polycystic kidney disease (ADPKD). This data was presented at the American...Read more