Treatment

Will my child need a kidney transplant, and when?

Answer

Many children living with autosomal recessive polycystic kidney disease (ARPKD) will eventually require a transplant. The majority will receive transplants between the ages of 4 to 10. 

It can be challenging for specialists to predict when a child will require a transplant, since the disease is different for each person. Generally speaking, the earlier on in life that kidney failure occurs, the sooner the child will require a transplant. Some children will not require a transplant until adulthood while others, who may be born with high blood pressure and advanced kidney problems, may require one sooner.  You may also need to wait until your child reaches an adequate weight and size.

Most transplantation typically lasts between 15 and 20 years before patients require an additional transplant.