April 30, 2017

April 2017 PKD e-News



Top 5 Questions About Living Kidney Donation

Whether you are thinking about kidney donation, or you are looking for information to share, the National Kidney Foundation's list of the top 5 questions about living donation explains the process and risks involved.  View the questions and answers here.


Upcoming Toronto Chapter Meeting cooking1.jpg

Topic: Healthy Cooking for PKD Patients and Their Families

Date: Wed, May 3 2017

Time: 7:00pm - 9:00pm

Place: Chef Maxine Knight's Food Studio, 510 Eglinton Ave W, Toronto, ON

Hosted by Chef Matan Volach, this cooking class will feature recipes for kidney disease stages 1-3 and information for patients in stages 4 and 5, as well as kidney transplant donors and recipients. To register for this cooking class, complete with tastings, click here.


Vitamin-D_2.jpgUpcoming Montreal Chapter Educational Meeting 

Topic: Optimizing Kidney Function and the Effects of Vitamin D

Date: Fri, May 5 2017 Time: 7:00pm - 9:00pm

Place: Civic Centre Theatre, 12001 Salaberry Blvd, Dollard-des-Ormeaux, QC

Dr. Sameena Iqbal will discuss various ways one can maintain proper kidney function and nutritional habits while also stressing the importance of staying hydrated. She will focus on how failing kidneys can affect one's vitamin D levels. Following the presentation, Dr. Iqbal will take the time to answer your questions related to kidney function, PKD and renal failure. For more information, click here

Cliquez ici pour la version en français.



Gene's Big Dumb Kidneys - A Campaign to Raise Awareness and His Search for a Kidney

With help from his family and friends, US resident Gene Okun introduced Big Dumb Kidneys to inspire people to learn more about PKD and kidney donation. Check out his light-hearted video about living with PKD below or read his interview with the PKD Foundation (USA), here.

"My kidneys are so big, they might as well be a billboard, and they definitely need a job: raising awareness of PKD and the need for living kidney donors." - Gene


April is BeADonor Month for Ontario Residents!TGOL_donor_card.png

This past month, thousands of Ontarians have checked their status as organ and tissue donors and 15% found that they weren't registered but now... they are! Register or check your status now at:

Click here to find out how to become an organ donor in your province. 

Cliquez ici pour savoir comment devenir un donneur d'organes dans votre province.



Montreal_QC_FR.pngUpcoming Montreal Chapter Fundraiser: Music Heals

Date: Sun, May 28 2017

Time: 2:00pm - 5:00pm

Place: Rialto Theatre, 5723 Av du Parc, Montreal, QC H2V 4G9

The PKD Foundation of Canada - Montreal Chapter proudly presents the 2nd annual Music Heals benefit concert in support of critical Canadian research for PKD. Talented artists from Montreal will perform a variety of musical genres and ethnic groups will reveal the beauty of their heritage through song and dance. For more information, click here.

Cliquez ici pour la version en français.


New Blog Post: PKD Will Not Beat Me - Before and after transplant: A Q&A with Nicole and Valen

This week on PKD Will Not Beat Me, Valen answered questions from PKD Foundation (USA) staff member Nicole Harr, to help her and others learn more about transplantation. Read the full post.

PKD Will Not Beat Me is an inspirational place for those seeking a positive environment to meet others with polycystic kidney disease (PKD) - to share stories, to ask questions and to make life-long friendships, encouraging each other to live positively along the way! PKD Will Not Beat Me is written by PKD patient and transplant recipient Valen Keefer.