February 2021 PKD e-News
Welcome to the PKD Foundation of Canada's February e-News! We have provided information important to helping you take action in your journey with PKD.
ICYMI: Polycystic Kidney Disease & the Pfizer-BioNTech COVID-19 Vaccine, Webinar Recordings are Available Online Now!
We were joined by nephrologist and PKD specialist, Dr. York Pei, on January 21st for an insightful presentation and Q&A segment (in English). Watch the English webinar recording here!
On February 17th, we were joined by nephrologist and PKD specialist, Dr. Daniel D. Bichet, for another informative engaging presentation and Q&A (in French). Watch the French webinar recording here!
Upcoming Webinar From the University Health Network:
Polycystic Kidney Disease Diagnoses and Treatment Options
When: Thursday, February 25th: 12:00pm-1:00pm EST
Speaker: Dr. York Pei
This complimentary presentation will provide an overview polycystic kidney disease, including diagnosis and treatment options.
This session is intended for patients, caregivers, family and healthcare providers - but anyone who is interested is welcome!
Concordia Researchers Find Hormone Treatment Can Be Effective Against Polycystic Kidney Disease
The researchers hope that their findings can be applied to treating people suffering from ADPKD. Read more about melatonin and PKD here!
The Power of Routines in Your Mental Health
Learn how you can use your morning routine to support mental health here!
IN THE NEWS: Teens Feeling Disconnected, Hopeless Due to COVID-19 Raises Alarm for Parents and Experts
"I kind of feel more alone and I kind of... shut down in a sense. And I lose my motivation to do anything, even simple things in my daily life."
Read the full CBC article here!
February 28th is Rare Disease Day!
Autosomal-recessive polycystic kidney disease (ARPKD) is a rare disease, affecting 1 in 20,000. For more information and to learn how to get involved, click here!
March 11th is World Kidney Day!
World Kidney Day 2021 is all about “Living Well with Kidney Disease”. The objective is to increase education and awareness about effective symptom management and patient empowerment, with the ultimate goal of encouraging meaningful participation in every-day life. Whilst effective measures to prevent kidney disease and its progression are important, patients with kidney disease – including those who depend on dialysis and transplantation – and their care-partners should also feel supported, especially during pandemics and other challenging periods, by the concerted efforts of kidney care communities.
WKD calls for the inclusion of life participation as a key focus in the care of patients with CKD and as a building block towards delivering the ultimate goal of living well with kidney disease.
To learn more about World Kidney Day and how you can get involved, click here!
Voices of PKD: Marie Lerminiaux
Read more of Marie's PKD story and a poem she has written about her journey here!
March is Kidney Month!
Kidney Month is recognized in March across Canada and the United States. We spend this time raising awareness of the importance of our kidneys to our overall health, and to reduce the frequency and impact kidney disease and its associated health problems have on an international level.
In honor of March’s National Kidney Month, we will once again be taking on daily challenges to raise awareness of polycystic kidney disease (PKD). Leading up to March 1st, stay tuned for information on how you can participate in the 31 Days of PKD Challenges!
You can follow along on Facebook, Twitter and Instagram for daily updates on our progress and share your progress using #PKDChallenge, #KidneyMonth, and #endPKD.
DIY2ENDPKD: How To Plan Your Own Successful Fundraiser
With the tips provided here, you can plan your own successful fundraiser to make your support go further in the fight to #endPKD.
Turn Your Old Car Into Support for the PKD Community!
Help People SEE ADPKD: Share Your Story Today!
Help give a voice to a widely unknown disease by sharing your story here.
You can read some of our Voices of PKD here!