January 2018 PKD e-News
Welcome to the PKD Foundation of Canada's January e-News! Here you will find information important to helping you take action in your journey with PKD.
Upcoming Toronto Chapter Meeting: New Guidelines for Optimal Management of ADPKD in Adults
February 11, 2018 from 2:00PM - 4:00PM
North York, ON M2N 5V7
- The role of genetic testing
- The role of renal imaging
- Predicting the risk of disease progression
- Pharmacological treatment options for ADPKD
- Specific recommendations for the treatment of ADPKD with tolvaptan
In the News: Plasmapheresis and Blood-type Incompatible Kidney Transplant
Until recently, a transplant patient could only receive an organ from someone with a compatible blood type. An organ from someone with an incompatible blood type would be perceived as foreign and vulnerable to attack by the recipient's natural antibodies. Now, through a process called plasmapheresis, a recipient can receive a kidney from a donor of a different blood type. This procedure is currently being provided at a growing number of transplant centers.
PKD-Friendly Recipes: Sweet & Savoury Snacks
Advocate Now for Public Coverage in Quebec for the Only Available Treatment of PKD
Next month, the treatment (tolvaptan or JINARC) will be submitted to Institut national d’excellence en santé et services sociaux (INESSS), the provincial entity responsible for the evaluation of medical treatments, for inclusion on the List of Medications of the Régie de l’assurance maladie du Québec (RAMQ).
PKD Health Notes: Tips to Keep Your Health Up in 2018
The New Year is a great time to reflect on how far we have come and consider new goals for the year ahead. Our friends at the PKD Foundation US have put together some practical tips and tricks to keep your health up in 2018.
BLOG: PKD Will Not Beat Me - Bounce Back, Give Back
(Part 1 & 2)
In Valen's most recent blog posts, she shares how her mental and physical determination helped her “bounce back” from her latest hospital stay to make an important trip from California to Colorado.
You can find this two-part blog post, and others written by Valen, here.
Voices of PKD: Submit Your Story
Voices of PKD is a collection of testimonials and photos that tell the story of PKD through the eyes of the PKD community. Click on the button below to share your own story and help let others know they are not alone!
From The New York Times: Patient Voices - Kidney Disease
Chronic kidney disease can be caused by diabetes, chronic hypertension, a genetic factor or a rare disease, and can lead to a renal failure. This New York Times article features five men and women discussing the impact this disease has had on their life, including Anna Bennett, a PKD patient from New York City.
In the News: Researchers Develop Risk Assessment Tool to Predict Future Kidney Disease
A new tool developed by Dr. Matthew James, from UCalgary's Cumming School of Medicine, is helping doctors assess whether acute kidney injury will progress to chronic kidney disease.
Two groups of patients were studied to hone in on whether acute kidney injury may progress to advanced chronic kidney disease. Over the course of 11 years, data from 9,973 Alberta patients was reviewed with six health measurements routinely taken: age, sex, urine protein levels, kidney function levels when admitted to hospital, kidney function levels throughout hospital stay, and kidney function levels when discharged.
Combined, these factors provided researchers with a framework with which to estimate a patient’s risk level of developing advanced kidney disease over the next year.
Read the full article featured in the University of Calgary's publication UToday.
Save the Date: March 8 is World Kidney Day
As part of National Kidney Month in March, World Kidney Day is a global awareness campaign aimed at raising awareness of the importance of our kidneys. This year's theme focuses on women's health, which you can read more about here.