January 2020 PKD e-News
Welcome to the PKD Foundation of Canada's January e-News! We have provided information important to helping you take action in your journey with PKD.
March is National Kidney Month!
Join the 31 Days of PKD Challenges!
Voices of PKD: Luisa Miniaci-Di Leo, Dollard-des-Ormeaux QC
Read Luisa's full story here.
James Blunt Breaks Down In Tears In Heartbreaking Music Video For New Track 'Monsters'
Blunt, who shot to fame with “You’re Beautiful” back in 2004, breaks down in tears in the emotional clip as he sings about his father, Charles Blount, who is battling stage 4 chronic kidney disease.
Watch the music video and read the full article here.
James was also recently on Good Morning Britain and shared the news that a donor had been found for his father and that the surgery was going to take place in the next couple of days!
You can read more about James' interview here.
Help People SEE ADPKD: Share Your Story Today!
Polycystic kidney disease (PKD) is one of the world's most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.
Help give a voice to a widely unknown disease by sharing your story here.
You can read some of our Voices of PKD here!
5 Ways To Inspire Living Kidney Donation
Begin by sharing your story. If you don’t feel comfortable telling your story, consider having a family member or friend become your donor advocate to help you spread the word and raise awareness about living donation and your need for a kidney."
Read the full article here.
Support the PKD Foundation of Canada by Leaving a Future Gift
Your legacy gift will enable the PKD Foundation of Canada to create a powerful philanthropic legacy by making a direct impact on the advancement of critical Canadian research. If you have not had the ability to make a major gift during your lifetime, legacy giving can be meaningful source of funding from you.
A legacy gift is a gift by Will with lasting meaning and is the simplest way to create a legacy of everlasting hope. It is a future gift that will not cost anything during your lifetime, with no extra out-of-pocket costs and your income will not decrease.
You can learn more about planned giving by clicking here.
Wills and Bequests
Make a future gift of lasting support by remembering the PKD Foundation of Canada (PKDFOC) in your Will. A Bequest in your Will may be the biggest gift of your life, and has the power to change the lives of all affected by PKD for better. Help even more PKD patients look forward to a future of full recovery.
This gift will not cost you anything during your lifetime, with no extra out-of-pocket costs and your income will not decrease. One of the benefits of making a Bequest is that your estate obtains a charitable tax receipt for the full amount received. Also, if stocks or real estate you left have appreciated in value, your gift may be exempt from capital gains.
You can learn more about bequests by clicking here.
Toronto Chapter Meeting: What's New in PKD Research - Recent Advances in Diagnostic, Prognostic Testing and Novel Therapies.
About the speaker:
The major theme of his research program is to identify genetic factors involved in the initiation or progression of common kidney diseases as potential targets for novel diagnostic tests and therapies. His research focuses on genetic, genomic and translational research of three common kidney disorders: Autosomal Dominant Polycystic Kidney Disease, IgA nephropathy and idiopathic nephrotic syndrome; and is supported by grants from the PKD Foundation of Canada, the Kidney Foundation of Canada, Physicians Incorporated Foundation and the Canadian Institutes of Health Research.
LISTEN: New Podcast from the Clinical Journal of the American Society of Nephrology: Epidemiology of ADPKD
The Rochester Epidemiology Project and radiology databases of Mayo Clinic and Olmsted Medical Center (healthcare providers for Olmsted County) were searched to identify all subjects meeting diagnostic criteria for definite, likely, and possible ADPKD. Annual incidence rates were calculated using incident cases during 1980-2016 as numerator and age- and sex-specific estimates of the population of Olmsted County as denominator. Point prevalence was calculated using prevalence cases as numerator and age- and sex-specific estimates of the population of Olmsted County on January 1, 2010 as denominator. Survival curves from the time of diagnosis were compared with expected survival of the Minnesota population.
Listen to the newest podcast from the Clinical Journal of the American Society of Nephrology on epidemiology of autosomal dominant polycystic kidney disease in Olmsted County here.
Free Online Learning Module from the Can-SOLVE CKD Network
They recently revealed Kidney Pro which is available now online. Kidney Pro is a free learning module that equips you with an understanding of the patient role in kidney research and empowers you to engage in the way that's best for you.
Become a kidney pro today by visiting Can-SOLVE CKD Network here.
ReferPKD Tool Now Available Nationwide on endPKD.ca
This tool will help you connect your general practitioner to physicians or clinics with a stated interest in autosomal dominant polycystic kidney disease. Your GP can then visit ReferPKD.com and have the option to refer directly to the physician with a well-informed referral, complete with all the information needed to plan a referral and omitting what isn't required.
ICYMI: BC Renal to Cover Cost of Tolvaptan Effective January 2020
Update on Coronavirus From the University Health Network, Toronto ON
To date, the virus has killed more than 100 people, infected at least 4,500 people in other countries and is showing no signs of slowing down.
Dr. Susy Hota, Medical Director of Infection Prevention and Control at the University Health Network, recently answered the top-asked questions about the new coronavirus for Global News.
You can read the full article here and get updates on the coronavirus here.
Working for a cure,
Your Friends at the PKD Foundation of Canada
Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.