March 2022 PKD e-News
Welcome to the PKD Foundation of Canada's March e-News! We have provided information important to helping you take action in your journey with PKD.
To view the e-News in French click here!
Read the full article here!
Check out more of Kristen's recipes on her Instagram, @kristenandpkd!
“Rare disease patients see, on average, seven or eight specialists over a five-year period before receiving a proper diagnosis. Technology that can drastically reduce that time period and enable patients to receive an earlier diagnosis is crucial, explains Jeff Robertson, Executive Director at the PKD Foundation of Canada.”
Read the full Toronto Star article featuring Dr. Nadia Alam and our very own Executive Director, Jeff Robertson here!
Join us for 31 Days of PKD Challenges! In honor of March’s National Kidney Month, we will once again be taking on daily challenges to raise awareness of polycystic kidney disease (PKD). Stay tuned to our social media (Facebook, Instagram and Twitter) throughout the rest of march for information on how you can participate in the 31 Days of PKD Challenges!
To read Wilma's full story and to share your own PKD story, visit www.endpkd.ca/voices_of_pkd
Green Shirt Day was created to honour, remember, and recognize all the victims and families of the fatal Humboldt Broncos crash in 2018, and to continue Logan’s Boulet's legacy by inspiring Canadians to talk to their families and register as organ donors. Logan Boulet saved 6 lives with his decision to become an organ donor just a couple weeks before devastatingly succumbing to his injuries.
To learn more about how you can get involved on April 7th, click here!
PKD warrior, Martha Stella, receives her second kidney transplant in the very hospital she works in as a nurse!
Read more about Martha's journey with PKD, here.
The PKD Foundation of Canada has a number of upcoming virtual social hours in March and April! We'd like to use this time to introduce new faces and catch up with seasoned members. Visit endpkd.ca/socialhour2022 for full details and to register for a social hour near you!
Please take our short survey below to provide us with your preferences regarding future educational webinars! If you are living with PKD or are a family member, caregiver or friend of someone living with PKD, then this survey is for you!
Donate-a-Car Canada will facilitate all aspects of your car donation from the pick up to the final sale, ensuring that your vehicle will be sold for the highest sale outcome possible. They will then forward the net proceeds on to us here at PKD Foundation of Canada and we will send you a tax receipt!
Visit endpkd.ca/donate_a_car to find out more about our partnership with Donate-A-Car!
The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community, driving vital programs around the world. They are made up of groups of volunteers – PKD patients, family members and friends just like you!
We are looking for volunteers for 2022! If you are interested, please email us at [email protected].
Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.
Help give a voice to a widely unknown disease by sharing your story here.
You can read some of our Voices of PKD here!