May 2020 PKD e-News
Welcome to the PKD Foundation of Canada's May e-News! We have provided information important to helping you take action in your journey with PKD.
Upcoming Webinar: COVID-19 and Transplant Patients- Your Questions Answered
The PKD Foundation of Canada is proud to present this complimentary webinar, How COVID-19 Affects the PKD Population. This webinar will give you the opportunity to ask questions to one of Canada’s leading ADPKD specialists.
Patients and their loved ones are invited to join this webinar to learn about the following topics and more:
- Am I more likely to get COVID-19 due to ADPKD?
- What should I do if I get COVID-19 and have ADPKD?
- How will treatment of ADPKD change during the COVID-19 pandemic
This is a FREE event. All are welcome!
Please note, the online registration code will be emailed to you on June 3rd 2020.
Funding Awarded to Landmark Research Project Studying Chronic Pain in ADPKD
Learn more about the EASE-PKD study here.
Max and Keira’s Law – the Organ Donation (Deemed Consent) Act, has now come into effect in England
Learn more about Max and Keria's Law here.
Covid-19 Webcast Series
Watch the webcast series here!
Looking After You Emotional Well-being during Covid-19
You can view the recording of this webinar here.
May 4th-10th Was Mental Health Week
The Canadian Mental Health Association has provided resources for those enduring the added stresses of Covid-19 and those who are suffering from mental illness here. You can read these insightful articles by clicking on the links below!
Canadian Team Treating COVID-19 Patients With Dialysis Sees 'Very Positive' Early Signs
"So far, the responses have been very positive – but obviously it's very early days," Dr. Chris McIntyre, who leads the team at the Lawson Health Research Institute in London, Ont., told CTV's Your Morning on Wednesday.
Read the full article here!
World Kidney Day Shares School Kits for Kids!
Download the presentations here!
10 Ways to Stay Active While Social Distancing
Learn more from 'Trip Outside' on how to stay active during quarantine here.
From Student to Patient to Spring Graduate- A First-hand Perspective
Starting off the last year of my program, I had a new outlook on patient care.
When given the option for selecting our final clerkship rotations this past fall, I knew I had to find a way to study the kidney."
Read more about Kristin Walsh, #PKDWarrior, and her journey here
Why You Should Keep Your Appointment With Your Family Doctor
Unity Health Toronto doctors Karen Weyman and Daphne Williams are here to tell you that not only are family doctors very much available to safely see their patients, but that delaying or skipping a necessary appointment could be damaging to your health."
Read the full article here!
Bike to the Moon Campaign Postponed Until 2021
Many factors were taken into consideration when making this decision, including the constant and careful review of municipal, provincial and federal COVID-19 case numbers, and physical distancing and pandemic recommendations from both the Public Health Agency of Canada and the Government of Canada.
With every city and town nationwide having different bylaws in place with respect to park and trail access, we also didn’t want to add any unnecessary confusion as it relates to local closures.
We thank those of you who have reached out and offered your support of this decision as well. We value your input so much, and as always - have your best interests in mind!
The Bike to the Moon will be back BIGGER and BETTER in 2021 and we can’t wait for you to join us!
Should you wish to purchase any of the 2020 Bike to the Moon branded cycling gear, our online store will remain open and can be found here.
Stay tuned for some exciting news on alternative family-friendly fundraising opportunities we will be planning over the course of the summer!
Woman Donates Kidney Amid Pandemic
“There was a man who needed a kidney. His wife wanted to give to him, but she wasn’t a match. But since I was a match, I could give to him. And since she was willing, she ended up giving to a woman who had been waiting for nine years on the deceased donor list,”
Read more about Kiani Gardner and donor recipient, Tyson Bell here.
B.C.'s Plans to Resume Surgeries is Welcome News
The Coquitlam man, who suffers from polycystic kidney disease, had been waiting to undergo a kidney transplant when the pandemic struck. This week, he received a call from the transplant clinic that he had a tentative surgery date."
Read more about Michael Coyle's story and B.C.'s transplant backlog here.
2020 Lillian Jean Kaplan International Prize for Advancement in the Understanding of PKD Award Winner
Read more about Arlene Chapman's work here!
Support the PKD Foundation of Canada by Leaving a Future Gift
Your legacy gift will enable the PKD Foundation of Canada to create a powerful philanthropic legacy by making a direct impact on the advancement of critical Canadian research. If you have not had the ability to make a major gift during your lifetime, legacy giving can be meaningful source of funding from you.
A legacy gift is a gift by Will with lasting meaning and is the simplest way to create a legacy of everlasting hope. It is a future gift that will not cost anything during your lifetime, with no extra out-of-pocket costs and your income will not decrease.
You can learn more about planned giving by clicking here.
Wills and Bequests
This gift will not cost you anything during your lifetime, with no extra out-of-pocket costs and your income will not decrease. One of the benefits of making a Bequest is that your estate obtains a charitable tax receipt for the full amount received. Also, if stocks or real estate you left have appreciated in value, your gift may be exempt from capital gains.
You can learn more about bequests by clicking here.
Help People SEE ADPKD: Share Your Story Today!
Polycystic kidney disease (PKD) is one of the world's most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.
Help give a voice to a widely unknown disease by sharing your story here.