November 2020 PKD e-News
Welcome to the PKD Foundation of Canada's November e-News! We have provided information important to helping you take action in your journey with PKD.
Watch The Webinar Recording Now: Experience of People with ADPKD with Ketogenic Diets-Feasibility & Effects
Recently, the Weimbs laboratory (UC Santa Barbara) has published the first evidence that induction of ketosis via ketogenic diet or intermittent fasting ameliorates disease progression in animal models of PKD. Due to their common use for weight control or for other health benefits, ADPKD patients may already have experimented with ketogenic dietary interventions. This case series study was designed to gain first insights about possible effects and the feasibility of ketogenic diets for ADPKD patients.
Sebastian Strubl, a Postdoctoral Researcher at the Department of Molecular, Cellular & Developmental Biology and Neuroscience Research Institute from the University of California Santa Barbara presented his preliminary findings of his study on ADPKD and ketogenic diets, and took questions afterwards.
This webinar gave PKD patients and their loved ones the opportunity to learn about the latest PKD research as well as ask questions to Dr. Strubl.
To watch all of our past educational webinar recordings, click here!
AAKP HealthLine Webinar: COVID-19 - Kidney Patient Planning for a Safe Holiday Season
In addition to the presentation, Jeffrey Silberzweig, MD, Chief Medical Officer at The Rogosin Institute, answers top patient questions!
Watch the webinar recording here!
The Centre for Living Organ Donation at UHN: Living Transplant Podcast
The Centre for Living Organ Donation's podcast series, 'Living Transplant' is out now!
"Hosts Brittany Cole (Bedside Nurse, Ajmera Transplant Centre) and Courtney Mahrt (Communication, Centre for Living Organ Donation) as they explore transplantation through the perspectives of frontline staff, researchers, innovators, and transplant pioneers, as well as organ donation recipients, living organ donors, families and caregivers.
This podcast is available on iTunes, Spotify or wherever you listen to podcasts. New to podcasts? Head to livingorgandonation.ca to listen!"
In the News: Teen Finds Kidney Donor After Long Search During Pandemic
"Weinberger was coaching his nephew's hockey team this time a year ago. A few months later, everything changed for him."
Read the full article here!
New Online Program For Those Who Need a Kidney Transplant: Having Your Donor Find YOU!
To learn more and view the 'Having a Donor Find You' video series, click here!
In the News: Kidney Recipient Meets the Donor Who Saved Him
The other transplant surgeon, Dr. James Piper, said, “Most of these donors are relatives or friends, had some kind of close, personal relationship. And just imagine somebody like Catherine coming forward and just walking into our office and saying I want to help someone I don’t even know. Take my kidney and give it to somebody I can really help. That’s above and beyond.”
Read the full article here!
In the News: The Gift of Life From a Friend
Watch Wade and John’s story here!
#GivingTuesday is Tuesday December 1st!
2020 has been a difficult year for many of us, including the charitable sector and the PKD Foundation of Canada. With event cancellations, funding shortfalls and increased need for support, now more than ever, you have the opportunity to make an even bigger impact with your support.
You can make a lasting impact in the lives of 66,000 Canadians and 12.5 millions worldwide by participating in an annual day of giving on December 1st. Learn more and help give a voice to a widely unknown disease here!
Have You Made Your Tax-Deductible Charitable Donation?
Turn Your Old Car Into Support for the PKD Community!
Help People SEE ADPKD: Share Your Story Today!
Help give a voice to a widely unknown disease by sharing your story here.
You can read some of our Voices of PKD here!