October 2021 PKD e-News
Welcome to the PKD Foundation of Canada's October e-News! We have provided information important to helping you take action in your journey with PKD.
Recordings of the 2021 Virtual PKD Summit are now available online at endpkd.ca/pkdsummit2021! Learn about a wide range of topics in the field of PKD, while hearing from some of the key stakeholders in the PKD medical community and beyond.
BC Renal, in partnership with BC’s Kidney Care Programs, invites you and your family/friends to a province-wide webinar on November 26th at 2pm (PST).
This webinar will help you learn about the different options. You can think about which might work best for you and discuss with your kidney care team.
To register, click here!
The thought of Having Your Donor Find YOU! sounds like an unusual approach to living kidney donation, but this is what actually happens. By spreading the word about your need, Your Donor Finds YOU! Visit endpkd.ca/findyourlivingdonor to get started today!
"A new form of expanded dialysis tested by researchers in London, Ont. is improving the quality of life for patients with chronic kidney disease, according to a newly published study."
Read the full article here!
"I got diagnosed with polycystic kidney disease or PKD in July of 2019. I don't remember much about the appointment. I do remember though, my doctor saying they discovered "innumerable cysts" - there were so many they couldn't count them."
Read Kristen's PKD story and share your own, at endpkd.ca/voices_of_pkd.
“Working in mice models, Stefan Somlo, MD, C. N. H. Long Professor of Medicine (Nephrology) and Professor of Genetics; chief, Section of Nephrology, and his research team, published a study in Nature Genetics showing that the damage caused by ADPKD can be reversed, demonstrating the surprising plasticity of the kidney.”
Read more here!
The PKD Foundation's Chief Research Officer Chris Rusconi, Ph.D breaks down the study and what this means for patients with ADPKD here!
With Halloween around the corner, make sure to check out this article that lists renal-friendly candies, as well as a list of treats that are recommended to be avoided by those with kidney disease or who are on dialysis.
Read the article here!
Now that Autumn has finally found us, it’s the perfect weather for soup! Try this terrific minestrone soup recipe from our friends at the National Kidney Foundation and let us know what you think!
This past September marked another highly successful Walk to END PKD campaign - our signature fundraising event! We came together virtually from all across Canada to raise over $140,000 to #endPKD! This is an amazing accomplishment and without your support, it would not have been possible.
We wish to give a massive thank you to all of our dedicated volunteers, as well as each and every participant, sponsor and donor to who helped to make this year's Walk to END PKD such a success!
Do you have an old car taking up space on your property? Visit endpkd.ca/donate_a_car to find out more about our partnership with Donate-A-Car!
The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community, driving vital programs around the world. They are made up of groups of volunteers – PKD patients, family members and friends just like you!
We are looking for volunteers for 2022! If you are interested, please email us at [email protected].
Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.
Help give a voice to a widely unknown disease by sharing your story here.
You can read some of our Voices of PKD here!