The PKD Foundation of Canada was proud to host it's second annual Virtual PKD Summit this November! The summit consisted of 4 evenings with educational events catered towards PKD patients and their loved ones, on November 16th, 17th, 23rd and 24th.
The PKD Summit 2022 is an opportunity for the PKD medical community, renal healthcare professionals, PKD patients, their families and loved ones to connect and hear presentations from top Canadian and International Key Opinion Leaders in the field of PKD. Thank you to all those who attended! Video recordings are now available below!
Wednesday Nov. 16th: Topics & Speakers
6:45-7:45 pm: How Living Organ Donation Gave Me My Life Back - Candice Coghlan, Kidney Transplant Recipient, Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre
Candice Coghlan shares her journey as a kidney transplant recipient, and how her mother became her donor, and gave her life twice, which in turn, enabled her to become a mother herself. As the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre, Candice shares tips on how to find a living donor, and information about the benefits of living donation.
7:45-8:45 pm: The Current Landscape and the Future Horizon for Children with ADPKD and ARPKD -Dr. Lisa Guay-Woodford, Director McGehee Joyce Professor of Pediatrics Director, Center for Translational Research Director, Clinical and Translational Science Institute at Children's National
Dr. Lisa Guay-Woodford presents on the basics of PKD in children, autosomal recessive polycystic kidney disease management, and current ARPKD research and clinical trials.
About the Speakers:
Candice Coghlan is the Education & Outreach Coordinator for the Centre for Living Organ Donation at UHN’s Ajmera Transplant Centre. Candice has been working and volunteering to support kidney patients and the renal community for 14 years. She has worked for the Kidney Foundation, Canadian Cancer Society, and Transplant Ambassador Program, which introduced kidney donors and kidney transplant recipients to renal patients seeking guidance about different pathways to transplantation. Candice has advocated passionately for the best quality healthcare for patients and their families, and continues to do so in her volunteer work. After receiving hemodialysis and peritoneal dialysis, Candice received a life-saving kidney transplant from her mother in 2009. In February 2021, Candice and her husband, Mike, were overjoyed to welcome their first child, a healthy baby girl. Transplant has brought wonderful opportunities to Candice’s life and she continues to share her journey to support others and give hope.
Dr. Lisa Guay-Woodford
Lisa M. Guay-Woodford, M.D., is the Richard L. Hudson Professor of Pediatrics at Children’s National Hospital and the George Washington University School of Medicine & Health Sciences (GW). She also serves as the associate vice president for Clinical and Translational Research at GW.
After completing a residency and fellowship training at Boston Children’s Hospital, Dr. Guay-Woodford began her career at the University of Alabama at Birmingham (UAB). She has become an internationally recognized pediatric nephrologist with a research program focused on identifying clinical and genetic factors involved in the pathogenesis of inherited renal disorders, most notably autosomal recessive polycystic kidney disease (ARPKD). Her laboratory has identified the disease-causing genes in several experimental models of recessive polycystic kidney disease and her group participated in the identification of the human ARPKD gene as part of an international consortium. In addition, her laboratory was the first to identify a candidate modifier gene for recessive polycystic kidney disease. For her contributions to the field, she was awarded the Lillian Jean Kaplan International Prize for Advancement in the Understanding of Polycystic Kidney Disease, given by the Polycystic Kidney Disease Foundation and the International Society of Nephrology.
In addition to her clinical and investigative work, Dr. Guay-Woodford has been a leader in promoting clinical and translational science. She established the UAB Hepato-Renal Fibrocystic Disease Research and Translational Core Center, funded by a National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) P30 award. She was the founding Director of the UAB Center for Clinical and Translational Science, funded by the National Institutes of Health (NIH) Clinical and Translational Science Award (CTSA) program. Currently, she serves as Director of the Children’s National Research Institute Center for Translational Research, as well as Director of the Clinical and Translational Science Institute at Children’s National (CTSI-CN), which is also funded by the NIH CTSA program.
Dr. Guay-Woodford has established and directed national and international collaborative research groups, as well as assumed numerous elected leadership positions, including: President of the Society for Pediatric Research, Councilor for the International Pediatric Nephrology Association, Chair of the NIH Cellular and Molecular Biology of the Kidney Study Section, Board of Trustee member for the Polycystic Kidney Disease Foundation, and Board member for the Association of Clinical and Translational Science. She currently serves as a member of the NIDDK Advisory Council.