September 2018 PKD e-News
Sept. 4th's PKD Awareness Day - A Great Success!
PKD Teal Shines Bright on Sept. 4th!
A special thank you goes out to the Cities of Edmonton and Welland for shining an even brighter light on PKD Awareness Day by illuminating the High Level Bridge and Welland Street Bridge teal, the official color of PKD and the PKD Foundation of Canada! There is no way one could have missed these beautiful monuments shining bright in support of the PKD community. Truly two beautiful sights to see!
There's Still Time to Register for the Toronto Walk to END PKD!
The Walk to END PKD signifies a united group, moving towards treatments and a cure for PKD, one of the most common life-threatening genetic diseases affecting thousands in Canada. While the Montreal, Guelph and Ottawa events are behind us, there's still time to join the Toronto Walk to END PKD taking place on Sunday, September 30!
Visit endpkd.ca/walk to sign up as a walk participant. You can choose whether you would like to participate as a team or register as an individual. Everyone is invited to sign up and create their own personal fundraising page, where you can join others in the fight to end PKD through interactive message boards and photos!
After registering online, you can take advantage of features like:
- creating a personal fundraising page to track dollars raised
- tools to email family, friends and colleagues
- making your kickoff gift online
Blog: PKD Will Not Beat Me - Tips to empower yourself as a great patient advocate
In Valen's most recent blog, she reminds us to trust our gut and listen to our body.
"Being a patient takes work and dedication. Depending on our health status, it can feel like a part-time to full-time job. It is a constant learning process and important to find a balance between our health challenges and everything else in life. We don’t want to get consumed by our appointments, our medical tasks and how we feel, but rather try to lead the best quality of life despite what we are going through."Read her full blog post here.
Upcoming Hamilton Chapter Halloween Dance PartyWhen
October 21, 2018
From 4:00 pm - 7:00 pm
Hamilton Air Force Association
128 King St EDundas, ON
Join us for Halloween fun with the Hamilton Chapter! Come for a family-friendly Halloween dance party complete with DJ, silent auction and activities for the kids! Admission Info Tickets available through the Hamilton Chapter Coordinators or at the door.
- $10 per ticket - includes one pizza slice.
- $35 per family - includes up to six pizza slices.
Admission includes an apple for each person and a Halloween treat! Additional pizza, refreshments and spirits can be purchased at the bar. View the event listing on our website.
- Costume contest with great prizes
- Painting with Crock A Doodle
- Micro photo shoot with Ten West Photography
- Balloon animals with Marco the Clown
Join the Toronto Chapter as Sandee Sharpe presents Challenge, Change & Choice, a description of her ongoing PKD journey as she continues to seek out Western advances in treatment and holistic approaches to overall health.
In this session, Sandee will share her recent experiences with:
- Three rounds of sclerotherapy
- Fourteen-day test trial for Octreotide, followed by 15 months on Sandostatin
- Those incidental (completely unexpected) findings - some out of the blue, and some related to PKD that I had never heard discussed before, so let's bring them out into the open.
View the event listing on our website, complete with the speaker's biography. Family, friends, caregivers and new members are always welcome!
PKD Health Notes: Renal Diet Cooking Videos from St. Paul's Hospital Dietitians
St. Paul's Hospital Renal Dietitians have created two cooking demonstration videos based on a series of cooking classes they hosted. The kidney-friendly recipes are quick, easy to follow and have common ingredients so patients can enjoy a delicious and nutritious meal without hours in the kitchen.
Please always consult with your health care team if you are planning to make changes to your diet or fitness routine.