Blog

#GIVINGTUESDAY

Help give a voice to a widely unknown disease. Donate this #GivingTuesday to the PKD Foundation of Canada, the only national organization solely dedicated to fighting PKD through research, education, advocacy, support and awareness.

Michael's PKD journey: From uncertainty to self-advocacy

Michael Coyle was a new Search-and-Rescue (SAR) recruit in British Columbia two decades ago when his blood pressure showed up abnormally high during training. As it turned out, it was the beginning of the road to a diagnosis that would change his life.

Old Drug, New Tricks, Provides Hope For Patients With Polycystic Kidney Disease

(Toronto, Canada – October 3, 2019) Dr. York Pei, an award-winning scientist at the University Health Network, has discovered a potential new use for an old drug, providing hope for patients suffering from polycystic kidney disease.

In a pre-clinical trial, Dr. Pei found Salsalate, a drug in the aspirin family, and an approved drug therapy for rheumatism, was successfully used to improve kidney survival and reduced cystic kidney disease severity. 

2019 PKD Awareness Day

PKD affects thousands in Canada and millions worldwide, yet many people have never heard of it. Together, we can change this! #PKDAwarenessDay (#Sept4) is our day to raise awareness about this disease and the negative impact it has on generation after generation. Don't forget to use #PKDAwarenessDay and #endPKD to join the online conversation. The more people that know about #PKD, the closer we can get to treatments and a cure. Together, let's raise awareness and end PKD!

Join us for the 2019 Bike to the Moon!

Bike to the Moon is a PKD Foundation of Canada annual fundraiser for both casual and serious cyclists, taking place June 21-24, 2019 in your own community and on your own route! Collectively, we aim to bike the distance to the moon (384,400 km) and raise critical funds for the Hereditary Kidney Disease Program at Toronto General Hospital.

Build relationships, have fun & make a difference in the Corner Brook PKD community!

Join the PKD Foundation of Canada's Corner Brook Chapter and help us spread awareness, support PKD patients and make a difference in our community.

Ongoing chapter activities include:

  • Silent auctions and raffle events
  • PKD Awareness Day BBQ
  • Other local fundraising events
  • Increasing awareness of PKD
  • Educational chapter meetings
  • Support groups & socials

The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community.

As a grassroots non-profit organization, the PKD Foundation of Canada prides itself in keeping administration costs low and impact high. In order to do this, we count on volunteers every day to help drive vital programs and awareness around Canada.

Sign up below to become a volunteer!

Meet Your Chapter Coordinator

 Meet Nina Young

Nina is the Corner Brook Chapter Coordinator. She was diagnosed with PKD at the age of 12. Since then, she's witnessed six of her nine family members pass as a result of the disease, including her mother.

Despite her prognosis, regular hospital visits and frequent complications, Nina is committed to spreading awareness and helping to find a cure for PKD.

Read Nina's interview with CBC for her full story here

 

Become a volunteer