Blog

Michael's PKD journey: From uncertainty to self-advocacy

Michael Coyle was a new Search-and-Rescue (SAR) recruit in British Columbia two decades ago when his blood pressure showed up abnormally high during training. As it turned out, it was the beginning of the road to a diagnosis that would change his life.

Old Drug, New Tricks, Provides Hope For Patients With Polycystic Kidney Disease

(Toronto, Canada – October 3, 2019) Dr. York Pei, an award-winning scientist at the University Health Network, has discovered a potential new use for an old drug, providing hope for patients suffering from polycystic kidney disease.

In a pre-clinical trial, Dr. Pei found Salsalate, a drug in the aspirin family, and an approved drug therapy for rheumatism, was successfully used to improve kidney survival and reduced cystic kidney disease severity. 

2019 PKD Awareness Day

PKD affects thousands in Canada and millions worldwide, yet many people have never heard of it. Together, we can change this! #PKDAwarenessDay (#Sept4) is our day to raise awareness about this disease and the negative impact it has on generation after generation. Don't forget to use #PKDAwarenessDay and #endPKD to join the online conversation. The more people that know about #PKD, the closer we can get to treatments and a cure. Together, let's raise awareness and end PKD!

Join us for the 2019 Bike to the Moon!

Bike to the Moon is a PKD Foundation of Canada annual fundraiser for both casual and serious cyclists, taking place June 21-24, 2019 in your own community and on your own route! Collectively, we aim to bike the distance to the moon (384,400 km) and raise critical funds for the Hereditary Kidney Disease Program at Toronto General Hospital.

Build relationships, have fun & make a difference in the Ottawa PKD community!

Join the PKD Foundation of Canada's Ottawa Chapter and help us spread awareness, support PKD patients and make a difference in our community.

Ongoing chapter activities include:

  • Annual Walk to END PKD fundraiser
  • Other local fundraising events
  • Increasing awareness of PKD
  • Educational chapter meetings
  • Support groups & socials


The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community.

As a grassroots non-profit organization, the PKD Foundation of Canada prides itself in keeping administration costs low and impact high. In order to do this, we count on volunteers every day to help drive vital programs and awareness around Canada.

Sign up below to become a volunteer!

Meet Your Chapter Coordinator

Meet Gina Hedges

Gina is the Ottawa Chapter Coordinator. When Gina's mother was diagnosed with PKD 24 years ago, Gina and her sister both decided to go through the screening process to become living organ donors. That's when they were both diagnosed with PKD.

In honour of her mother and family members affected, Gina fights tirelessly to advocate for the local PKD community.

Watch Gina's full story:



Meet Your Walk Coordinator

Meet Jennifer Woods

Jenn is the Ottawa Chapter's Walk Coordinator. Jennifer, her mother and her sister are all affected by PKD. Their prognosis is eventual dialysis and transplantation.

Jenn is committed to spreading awareness and helping to find a cure for PKD.

Watch Jenn's full story:

Become a volunteer