Blog

Welcome to the Saskatoon Chapter!

Hi, my name is Graham Scoles and I became aware of the PKD Foundation of Canada in 2015. I looked into starting a PKD chapter in Saskatoon at that time and we are slowly growing. I was diagnosed with PKD in 1986 and started dialysis in 1992. I was fortunate to receive a cadaveric kidney in 1994, which performed well until about 2017. A year later, I am now back on dialysis and hoping to receive a second transplant. 

As a PKD patient on dialysis, it is exciting to see some of the advances that are being made in both understanding and treating PKD, in transplantation and also in kidney disease in general. This research is of course possible in part through funds raised by the PKD Foundation of Canada and its chapters.

Our Saskatoon Chapter is still small but through our meetings we hope to provide an opportunity for those affected by PKD in and around the city to come together for friendship and discussion.

 

The New England Journal of Medicine Publishes Phase 3 Results for Tolvaptan in Patients with ADPKD

We are pleased to share some encouraging news regarding the treatment landscape for those living with ADPKD. Today, Otsuka announced results from their Phase 3 REPRISE trial of tolvaptan in patients with autosomal dominant polycystic kidney disease (ADPKD). This data was presented at the American Society of Nephrology (ASN) Conference in New Orleans and published online in the New England Journal of Medicine.

Large Tolvaptan Trial Results Show Positive Future for ADPKD Patients

We are glad to share some great news for the Canadian PKD community, as tolvaptan receives positive results from an additional one year international trial. The trial outcome was positive for tolvaptan in the treatment of ADPKD. Also of note, the trial had participation from Canadian patients and nephrologists.