Voices of PKD is a collection of testimonials and photos that tell the story of PKD through the eyes of the PKD community.
You can help give a voice to a widely unknown disease by sharing your story. Your experiences can paint a powerful picture of what it’s like to live with PKD.
"I was officially placed on the transplant list in January 2024. Things deteriorated quickly. I kept losing weight because I could barely eat; there was no space inside for food. I survived on Boost, Ensure, creamy foods (basically baby food), while dealing with severe acid reflux, vomiting, a metallic taste in my mouth, dizziness, lightheadedness, anemia, declining kidney function, and eventually, no urine output."