Get Involved

Voices of PKD

Voices of PKD is a collection of testimonials and photos that tell the story of PKD through the eyes of the PKD community.

You can help give a voice to a widely unknown disease by sharing your story. Your experiences can paint a powerful picture of what it’s like to live with PKD.

Share Your Story   Read All Stories

Featured Voice

PKD

Voices of PKD: Kelly Konieczny, AB

"Hello, my name is Kelly Konieczny. I first shared my PKD story with this community in September of 2022. At the time, my kidneys had failed (one had been completely removed) and I was on dialysis four or five times per week, waiting for a kidney donation. I'm still waiting. I've been on dialysis now for over three years, and I've been waiting for a kidney transplant for more than four years."