Knowing your child has been diagnosed with ARPKD can be very difficult. Sharing information is a very personal choice, and there are often many factors to consider. It can be helpful to answer questions in a simple, easy way, rather than providing an overwhelming amount of detail.
The PKD Foundation of Canada has many resources available for all those affected by PKD, including chapter meetings, online resources and information, and an automated phone service for any questions. Click here for more information.