Love Your Kidneys: Nutrition and PKD - March 20, 2024
What better way to celebrate nutrition month (March 2024) and recognize the impact it can have on PKD than with a cooking demonstration and live webinar? We joined Emily Campbell, registered dietitian and certified diabetes educator, as she shared a recipe from the new PKD-focused Love Your Kidneys cookbook.
Introduction to the Kidney Paired Donation (KPD) Program - February 15, 2024
Kidney paired donation is a program that matches transplant candidates with suitable living donors. It gives people the chance to become a living kidney donor while ensuring that someone they want to help receives a needed kidney, even if they are not a direct match. Darlene Jagusic from Canadian Blood Services described the KPD program, and two PKD patients - Kelly Konieczny and Karen Murkovic - shared their KPD journeys.
Itching for New Therapies for Chronic Kidney Disease Associated Pruritus (CKD-aP) - December 7, 2023
Dr. Kathik Tennankore shared an introduction to itching associated with chronic kidney disease, including a description of CKD-aP, how it's screened and evaluated, and treatment options - including new therapies.
PKD in 2023 - 2023 Vancouver PKD Patient Forum - October 18, 2023
Dr. Mike Bevilacqua shared an overview of PKD in 2023: the current state of research, and treatment options.
MPRAD en 2023 - Forum montréalais des personnes atteintes de la MPR 2023 - September 19 2023
In recent years, the management of polycystic kidney disease has undergone a number of developments. The aim of this interactive conference was to provide an update on autosomal dominant polycystic kidney disease (ADPKD). How is it diagnosed? What are the symptoms? How does the disease evolve, and how can it be treated? Speaker: Dre. Marie-Noëlle Pépin, IRCM Montreal Clinical Research Institute.
Understanding Liver Transplantation for PKD and PLD Patients - June 28th 2023
In this webinar, Dr. Leslie Lilly, MD MSc FRCP(C) summarized the role of liver transplantation in the management of PKD and PLD, and also discussed the outcomes of liver transplantation in patients with these diseases. He was joined by PKD patient and two-time liver transplant recipient, Jan Robertson, who shared her journey through the transplant process.
All About Polycystic Kidney Disease - March 1st 2023
This Webinar was an overview of polycystic kidney disease, the pathway to transplant and how the PKD Foundation of Canada can support you. This session was co-presented by the Centre for Living Organ Donation and the PKD Foundation of Canada, and provided an in-depth look at the journey with polycystic kidney disease from a transplant recipient perspective, Jan Robertson, a nephrologist who specializes in PKD, Dr. Moumita Barua and the Executive Director of the PKD Foundation of Canada, Jeff Robertson.
Medical Cannabis in Patients with Chronic Kidney Disease - February 15th 2023
During this webinar, we are joined by Dr. Micheli Bevilacqua, a nephrologist, Dr. Dan Martinusen and Dr. Claudia Ho, pharmacists, and Paul Watson, a PKD patient. Topics of discussion included:
- An overview of the current state of evidence regarding use of cannabis in people living with kidney disease
- Practical considerations for those using or considering using cannabis
- How cannabis use integrates into overall care of people living with kidney disease
- Discussion of lived experience using cannabis as part of management of polycystic kidney disease symptoms
Getting to Know the Transplant Ambassador Program - August 31st 2022
Here, we learn about TAP’s Ambassador Directory, and their newest online service, ‘Patients Seeking Donors. We were joined by Susan Mckenzie, Co-founder and Chair of Transplant Ambassador Program, as well as Claudia Morgan & Paul Teolis, both PKD patients, who shared their transplant and TAP Ambassador experiences.
Clarity on Keto for PKD: Is it right for you? - June 16th 2022
Ketogenic diets have taken the PKD community by storm since research of UCSB was published in 2019 indicating ketosis may be able to reverse cyst growth. Over the last 2 years, Jessianna Saville and her dietitians have worked with over 100 people with PKD on ketogenic diets. They've had some exciting results and learned some incredible things. Keto can be amazing but isn't right for everyone. In order to further validate their observations, their kidney-safe ketogenic approach will be put to the test in an upcoming clinical trial in Toronto, led by Dr. York Pei. Jessianna shares details about this trial, why it is an exciting step forward, and how you can be involved.
Why Does ADPKD Severity Differ Among Family Members? - April 28th 2022
If polycystic kidney disease (PKD) is caused by a genetic mutation, and family members have the same mutation, why are some family members more severely affected than others? Dr. Lanktree discusses what we can learn about autosomal dominant polycystic kidney disease (ADPKD) by examining affected families.
Healthy Diet, Intermittent Fasting and PKD - July 10th 2021
This session consisted of two parts:
(1) Lecture (20 minutes and 10 minutes Q&A): Review: (i) recent preclinical studies of novel dietary intervention (e.g. caloric restriction, ketotic diet) in slowing experimental PKD progression; (ii) elements of a healthy diet; (iii) potential utility of intermittent fasting or time-restricted feeding for clinical treatment of ADPKD.
(2) Practical advice for a healthy diet by a registered RD and Open forum for Q&A.
Advancing PKD Care in Today's Society: April 22nd 2021
This webinar included an overview of a series of resources that Dr. Micheli (Mike) Bevilacqua and his team at BC Renal have developed in British Columbia for ADPKD care. These resources are to help with delivering more tailored services to ADPKD patients in kidney clinics. The goal is to put tools in place so that all kidney clinics can offer ADPKD specific care, supported by a network of clinicians around the province. Dr. Micheli (Mike) Bevilacqua will explain how their plan was developed, how it will be implemented, and what they have learned so far. Although this webinar relates to patient care in British Columbia, the information and resources shared are of value to patients nation-wide.
La maladie polykystique des reins et le vaccin Pfizer-BioNTech contre la COVID-19: 17 février 2021
La COVID-19 représente un sérieux danger pour la santé, et son effet sur nos vies ne cesse d’évoluer chaque jour. En cette période sans précédent, les personnes présentant des affections préexistantes doivent être d’autant plus vigilantes. Alors que le vaccin Pfizer-19 est en cours de distribution au Canada, de nombreuses personnes souffrant de MPR se posent des questions. Nous avons pour objectif de vous fournir les informations les plus récentes relatives à ce virus et au vaccin, pour vous aider à avoir l’esprit tranquille en ces temps difficiles.
Polycystic Kidney Disease & the Pfizer-BioNTech COVID-19 Vaccine, with Dr. York Pei: January 21st 2021
COVID-19 is a serious health concern and the impact on our lives continues to evolve on a daily basis. In these unprecedented times, individuals with pre-existing conditions need to be especially careful. With the distribution of the Pfizer-BioNTech COVID-19 Vaccine under way in Canada, many of those affected by PKD have questions. It is our goal to provide you with up-to-date information as it relates to this virus, the vaccine, and to help ease your mind during this challenging time.
Case Study Presentation with Dr. Sebastian Strubl: Experience of People with ADPKD with Ketogenic Diets-Feasibility & Effects: October 29th 2020
Recently, the Weimbs laboratory (UC Santa Barbara) has published the first evidence that induction of ketosis via ketogenic diet or intermittent fasting ameliorates disease progression in animal models of PKD. Due to their common use for weight control or for other health benefits, ADPKD patients may already have experimented with ketogenic dietary interventions. This case series study was designed to gain first insights about possible effects and the feasibility of ketogenic diets for ADPKD patients.
Managing Depression and Anxiety with Polycystic Kidney Disease with Carla Willaims, BSW, RSW: August 27th 2020
The PKD Foundation of Canada was proud to present this complimentary webinar that gave the PKD community the opportunity to ask questions to Carla Williams, a Kidney Care Clinic and Transplant Social Worker.
How COVID-19 Affects the PKD Population with Dr. Matthew Lanktree: July 4th 2020
COVID-19 is a serious health concern and the impact on our lives continues to evolve on a daily basis. In these unprecedented times, individuals with pre-existing conditions need to be especially careful. It is our goal to provide you with up-to-date information as it relates to this virus, and to help ease your mind during this challenging time.
How COVID-19 Affects the PKD Population Q&A with Dr. Matthew Lanktree: July 4th 2020
The PKD Foundation of Canada is proud to present the recording of our webinar, How COVID-19 Affects the PKD Community. This portion of our webinar gave our community the opportunity to ask questions to one of Canada’s leading ADPKD specialists, Dr. Matthew Lanktree.