Media and News

PKD Awareness Day: Local Proclamations

Each year, Health Canada recognizes September 4th as National PKD Awareness Day! This year we are looking for volunteers who want to help spread awareness in their own communities by working with us to secure local proclamations in their communities.

Large Tolvaptan Trial Results Show Positive Future for ADPKD Patients

We are glad to share some great news for the Canadian PKD community, as tolvaptan receives positive results from an additional one year international trial. The trial outcome was positive for tolvaptan in the treatment of ADPKD. Also of note, the trial had participation from Canadian patients and nephrologists.

Canadian Expert Consensus Published to Guide Optimal Management of ADPKD

The PKD Foundation of Canada is pleased to share that a Canadian consensus has been published by nephrologists across the country. This consensus aims to give nephrologists evidence-informed recommendations to guide optimal management of adult patients with autosomal dominant polycystic kidney disease (ADPKD).

Ontario woman sees progress in fight against genetic kidney disease

The fourth and final article in our National Post PKD series features Jan Robertson, a woman who is seeing new hope after years of living with polycystic kidney disease. Doctors discovered Jan had PKD more than 35 years ago, and she hasn’t stopped fighting since. Read more about Jan’s story, and...

Devastating disease that runs in the family

Part two of our four-part National Post PKD series features the entire Pekar family from Hamilton, ON. Arie Pekar received a kidney transplant from a close friend shortly after Arie’s son was born. Unfortunately his mother, Ilana, who has been on dialysis for PKD for 23 years, has yet to find a...

Confronting the ‘hidden disease’

Our four-part PKD series launched today in the National Post, featuring one of our youngest PKD heroes, Harrison Osborne! Harrison loves superheroes and in fact, is one himself. He was diagnosed with autosomal recessive polycystic kidney disease (ARPKD) before he was even born and is overcoming the odds, living his life...

At 47 I May Look Pregnant, But I'm Living With Kidney Disease

This blog first appeared in the Huffington Post I'm 47 years old and people are still asking me if I am pregnant. I try to take it as a compliment about how young I must look, but when people first started asking me, I would turn very red and uncomfortable....

PKD Awareness Day 2016

Once again, Health Canada is recognizing September 4th as National Polycystic Kidney Disease (PKD) Awareness Day – a special day devoted to raising awareness of this life-threatening, genetic disease.

ADPKD Online Survey Invitation closes at 11:59pm on Monday August 8, 2016

Are you aged 18-60 years and have been diagnosed with autosomal dominant polycystic kidney disease?  If so, we really need your help.   The market research survey among people aged 18-60 years who have been diagnosed with autosomal dominant polycystic kidney disease (ADPKD) will close at 11:59pm on Monday August 8,...

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