Media and News

Devastating disease that runs in the family

Part two of our four-part National Post PKD series features the entire Pekar family from Hamilton, ON. Arie Pekar received a kidney transplant from a close friend shortly after Arie’s son was born. Unfortunately his mother, Ilana, who has been on dialysis for PKD for 23 years, has yet to find a...

Confronting the ‘hidden disease’

Our four-part PKD series launched today in the National Post, featuring one of our youngest PKD heroes, Harrison Osborne! Harrison loves superheroes and in fact, is one himself. He was diagnosed with autosomal recessive polycystic kidney disease (ARPKD) before he was even born and is overcoming the odds, living his life...

At 47 I May Look Pregnant, But I'm Living With Kidney Disease

This blog first appeared in the Huffington Post I'm 47 years old and people are still asking me if I am pregnant. I try to take it as a compliment about how young I must look, but when people first started asking me, I would turn very red and uncomfortable....

PKD Awareness Day 2016

Once again, Health Canada is recognizing September 4th as National Polycystic Kidney Disease (PKD) Awareness Day – a special day devoted to raising awareness of this life-threatening, genetic disease.

ADPKD Online Survey Invitation closes at 11:59pm on Monday August 8, 2016

Are you aged 18-60 years and have been diagnosed with autosomal dominant polycystic kidney disease?  If so, we really need your help.   The market research survey among people aged 18-60 years who have been diagnosed with autosomal dominant polycystic kidney disease (ADPKD) will close at 11:59pm on Monday August 8,...

Online Registration for the 2016 Walk for PKD is Now Open!

Registration for the 2016 Walk for PKD is now open!     The Walk for PKD signifies a united group, moving towards treatments and a cure for polycystic kidney disease (PKD), one of the most common life-threatening genetic diseases affecting thousands in Canada.  You can make an impact on this...

Participation Request for ARPKD International Studies

Do you have a child with ARPKD?   The University of Alabama at Birmingham Hepato/Renal Fibrocystic Disease Core Centre (UAB HRFDCC) has developed a unique set of clinical, genetic and educational resources for ARPKD. Autosomal recessive polycystic kidney disease (ARPKD) and other hepato-renal fibrocystic diseases (HRFD) are relatively rare recessive disorders,...

Do you have a child with ARPKD?

The University of Alabama at Birmingham Hepato/Renal Fibrocystic Disease Core Centre (UAB HRFDCC) has developed a unique set of clinical, genetic and educational resources for ARPKD. Autosomal recessive polycystic kidney disease (ARPKD) and other hepato-renal fibrocystic diseases (HRFD) are relatively rare recessive disorders, but constitute an important set of childhood...

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