Media and News

September is Brain Aneurysm Awareness Month

If you’ve never heard of aneurysms before, or if you’ve only heard the word in passing, don’t worry. You’re not alone. Today, let’s take a deep dive into what aneurysms are, why they matter for people with PKD, and what you can do to stay proactive about your health.

August 2025 Issue | PKD e-News

This month we have information about PKD Awareness Day, the latest on the Walk to END PKD, how to eat out with PKD, and more!

Patient Partner Experiences | Webinar Video

Watch this inspiring 1-hour roundtable featuring the voices of four diverse PKD patients who have stepped up as patient partners - using their lived experiences to influence research, improve care, and advocate for meaningful change across Canada.

Smart Strategies for Eating Out with PKD

Craving a break from cooking? Eating out can be tricky when you have polycystic kidney disease (PKD), but it doesn’t have to be, and you can still stay on track. In this month’s blog, registered dietician and certified diabetes educator Emily Campbell shares smart strategies to help you navigate restaurant...

Maria Parrella-Ilaria, Sault Ste. Marie ON | Voices of PKD

"My name is Maria, and I am a visual artist and former art therapist/arts educator, currently living in Sault Ste. Marie, Ontario, with my husband—author and musician Mark—and our two bossy felines. These days, I’d describe myself as persistent, determined, stubborn, and grateful."

July 2025 Issue | PKD e-News

This month we have information on staying hydrated this summer, how to get involved with the 2025 Walk to END PKD, patient stories from Kim and Courtney, and more!

Courtney Gibson, ON | Patient Story

"Hi, my name is Courtney Gibson. I’m 28 years old, and this is the story of how a complete stranger gave me a second chance at life. When I was born, doctors told my parents I would never walk, talk, or sit up on my own - and that I likely...

Hydration and PKD: What You Need to Know | Kidney Nutrition

If you have polycystic kidney disease (PKD), you may have been told to drink more water and eat less salt. But why does this matter? Can you drink too much? And what should you be drinking? In this month’s blog, registered dietician and certified diabetes educator Emily Campbell breaks it...

Kim Holowatiuk, AB | Voices of PKD

"Living with Stage 5 polycystic kidney disease (PKD), I’ve experienced a huge loss of muscle mass, balance, and strength. The fatigue alone has been incredibly discouraging. I used to be very active—even an athlete—so feeling so limited now has been frustrating and disheartening."

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