Rare Disease Day 2020: We Are the 300 Million!
February 29th, 2020 is Rare Disease Day! Show your support by learning about actions you can take in order to raise awareness.
Facebook Live: Interview with Dr. Bollée (Nephrologist and Director of the Kidney Rare Disease Clinic at the IRCM) on March 11th at 2pm
Ahead of World Kidney Day on March 12th 2020, Montreal Chapter Coordinator, Luisa Miniaci-Di Leo has been invited by Dr. Bollée to talk about PKD live on Facebook from his office at IRCM (Institut de Recherches Cliniques de Montréal) on March 11 at 2pm.
Rare Disease Research Day 2020 at the Research Institute of the McGill University Health Centre
As part of the patient advocacy groups in Montreal, Luisa Miniaci-Di Leo was invited to participate in the “Rare Disease Research Day” at the McGill University Health Centre.
Montreal PKD Patients Visit Federal and Provincial Officials
"The Montreal Chapter is physically located in Dollard-Des-Ormeaux and started its 2020 awareness campaign early with a visit to DDO federal MP Sameer Zuberi and provincial national assembly representative Carlos J Leitao. Also participating in both meetings were several PKD patients from the Greater Montreal Area."
Happy Holidays from the PKD Foundation of Canada!
With 2019 drawing to a close, we hope you remember the PKD Foundation of Canada in your holiday plans and consider making a year-end gift to help advance Canadian research, advocacy and support for more PKD patients and their loved ones.
#GIVINGTUESDAY
#GivingTuesday is December 1st 2020! Help give a voice to a widely unknown disease. Donate this #GivingTuesday to the PKD Foundation of Canada, the only national organization solely dedicated to fighting PKD through research, education, advocacy, support and awareness.
University Health Network's 2019 Toronto PKD Scientific Conference
Watch the University Health Network's 2019 PKD Conference Recordings Today!
Michael's PKD journey: From uncertainty to self-advocacy
Michael Coyle was a new Search-and-Rescue (SAR) recruit in British Columbia two decades ago when his blood pressure showed up abnormally high during training. As it turned out, it was the beginning of the road to a diagnosis that would change his life.
Old Drug, New Tricks, Provides Hope For Patients With Polycystic Kidney Disease
(Toronto, Canada – October 3, 2019) Dr. York Pei, an award-winning scientist at the University Health Network, has discovered a potential new use for an old drug, providing hope for patients suffering from polycystic kidney disease. In a pre-clinical trial, Dr. Pei found Salsalate, a drug in the aspirin family,...