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Voices of PKD

Voices of PKD is a collection of testimonials and photos that tell the story of PKD through the eyes of the PKD community.

You can help give a voice to a widely unknown disease by sharing your story. Your experiences can paint a powerful picture of what it’s like to live with PKD.

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Featured Voice


Clayton Rafuse, AB

My name is Clayton and I am a 23 year-old Paramedic living In Alberta. March of 2020 I lost my father, Pete Rafuse, to PKD. PKD is an illness my father lived with for the majority of his life without issue.  His doctor’s care plan was to monitor and see what time would bring.