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Voices of PKD

Voices of PKD is a collection of testimonials and photos that tell the story of PKD through the eyes of the PKD community.

You can help give a voice to a widely unknown disease by sharing your story. Your experiences can paint a powerful picture of what it’s like to live with PKD.

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Featured Voice


Luisa Miniaci-Di Leo, Dollard-des-Ormeaux QC

My name is Luisa Miniaci-Di Leo. Last October I turned 63, and each sunrise makes me feel bittersweet because I have already outlived my grandmother. I’m a resident of Dollard Des Ormeaux, and Montreal Chapter and Walk Coordinator for the PKD Foundation of Canada. Here’s why I took on the role as Chapter Coordinator in spring 2014.