Voices of PKD is a collection of testimonials and photos that tell the story of PKD through the eyes of the PKD community.
You can help give a voice to a widely unknown disease by sharing your story. Your experiences can paint a powerful picture of what it’s like to live with PKD.
My name is Tetyana and I wanted to share my PKD story with you. I found out I had PKD at 22 at an emergency department here in Winnipeg MB. It was discovered by mistake. I had absolutely no knowledge what PKD was or how serious it is. I didn’t realize at the time how this was going to change my life. I am the first in my family to have PKD. I came from a small town in Ukraine called Ivano-Frankivsk, so I am not sure when the cysts started growing on my kidneys as they didn’t do ultrasounds back then.