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Voices of PKD

Voices of PKD is a collection of testimonials and photos that tell the story of PKD through the eyes of the PKD community.

You can help give a voice to a widely unknown disease by sharing your story. Your experiences can paint a powerful picture of what it’s like to live with PKD.

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Featured Voice


Shealeen Boyce, St-Eustache QC

I was diagnosed with polycystic kidney disease (PKD) in 1996 at the age of 35. There is no history of PKD on either side of my family, so I have what is called a mutation. Both my children have tested negative for PKD, so that is a huge relief as the disease will stop with me.