I believe in the power of advocacy, support and hope. My name is TJ Sullivan, and while I may not have polycystic kidney disease (PKD), the effects of this disease hits close to home, and the cause to fund research and a cure is incredibly close to my heart.
Hi! It’s me, Judith, who told my story here almost a year ago. Since that time, a lot of things have changed. I am now transplanted with a new kidney, which a stranger gave to me thanks to my search for a donor on social media! I was asked to...
My name is Christina Meyer and I was diagnosed with autosomal dominant polycystic kidney disease (ADPKD) when I was 18 years old. It was an accidental finding during an ultrasound, and it was then that it came to light that I had cysts on my kidneys. Realizing that it is...
"We all share a very special bond as PKD patients and transplant recipients. We immediately become friends whenever our paths cross, whether online or in-person. I have seen so many miracles over the last 25 years. Each one makes me smile and helps heal my heart."
In October, two cysts on my left kidney ruptured. Had it not been for some PKD patients encouraging me, I would never have written this. They suggested I write down my journey because they too have been through this before. They wanted me to educate those who do not understand...
My PKD journey, like many people’s, started when I was 18 with the ultrasound to diagnose whether I had inherited PKD. My Mom’s side of the family had been identified as having PKD since my late grandfather had a stroke in his 20s and passed away in his mid-30s (both...
Hello, my name is Kelly Konieczny. I am a daughter, sister, auntie, wife and mother in my family and a friend to many. I live in a small farming community in Alberta and am currently on medical leave from an Educational Assistant position I held for 25 years. This is...
My name is Ciara ("Kee-ra") and I'm a Registered Holistic Nutritionist in Toronto, Ontario, Canada with a real passion for kidney health.
Even though I dislike writing, I would like to share these results to give hope to other people with polycystic kidney disease (PKD). About 15 years ago, I had a scan because of acute appendicitis. The scan also revealed many polyps and cysts.
My name is Judith, I am 35 years old, I live in Quebec and I have polycystic kidney disease (PKD). I am of Quebec and American origin.