Voices of PKD: Elyse Gawley, Coquitlam BC
Voices of PKD is a collection of testimonials and photos that tell the story of PKD through the eyes of the PKD community.
Voices of PKD: Marie-Pierre Schryburt, Ottawa ON
Marie-Pierre last shared her story with us in July 2020. Since then she has received a kidney donation. Read more about her PKD journey here.
Voices of PKD: Jennifer Morgan, Halifax NS (Part 2)
Jenn has given us an update on her journey since her first Voices of PKD story in December 2021. Last May, Jenn received a new kidney thanks to the Live Kidney Paired Donation Program, in Halifax NS. Read “Part 2” of her story, and share your own, at endPKD.ca/voices_of_PKD.
Voices of PKD: Brittany Hay and Colin Grieve
Polycystic kidney disease (PKD) is no stranger to Colin Grieve. Colin grew up surrounded with people battling PKD; including his father, uncle and grandmother. Colin had his battles as a child, a youth, and as an adult. He has memories of spending time in the IWK Health Centre in Halifax,...
Voices of PKD: TJ Sullivan
I believe in the power of advocacy, support and hope. My name is TJ Sullivan, and while I may not have polycystic kidney disease (PKD), the effects of this disease hits close to home, and the cause to fund research and a cure is incredibly close to my heart.
Voices of PKD: Judith Belair-Kyle
Hi! It’s me, Judith, who told my story here almost a year ago. Since that time, a lot of things have changed. I am now transplanted with a new kidney, which a stranger gave to me thanks to my search for a donor on social media! I was asked to...
Voices of PKD : Christina Meyer
My name is Christina Meyer and I was diagnosed with autosomal dominant polycystic kidney disease (ADPKD) when I was 18 years old. It was an accidental finding during an ultrasound, and it was then that it came to light that I had cysts on my kidneys. Realizing that it is...
Voices of PKD: Jan Robertson, Newmarket ON
"We all share a very special bond as PKD patients and transplant recipients. We immediately become friends whenever our paths cross, whether online or in-person. I have seen so many miracles over the last 25 years. Each one makes me smile and helps heal my heart."
Luisa Miniaci-Di Leo, Montreal QC
In October, two cysts on my left kidney ruptured. Had it not been for some PKD patients encouraging me, I would never have written this. They suggested I write down my journey because they too have been through this before. They wanted me to educate those who do not understand...
Eric Hampel
My PKD journey, like many people’s, started when I was 18 with the ultrasound to diagnose whether I had inherited PKD. My Mom’s side of the family had been identified as having PKD since my late grandfather had a stroke in his 20s and passed away in his mid-30s (both...