Stories

Kelly Konieczny, AB

Hello, my name is Kelly Konieczny. I am a daughter, sister, auntie, wife and mother in my family and a friend to many. I live in a small farming community in Alberta and am currently on medical leave from an Educational Assistant position I held for 25 years. This is...

Voices of PKD: Mario Laureti, Gatineau QC

Even though I dislike writing, I would like to share these results to give hope to other people with polycystic kidney disease (PKD). About 15 years ago, I had a scan because of acute appendicitis. The scan also revealed many polyps and cysts.

Wilma Haas, Edmonton AB

"I was diagnosed with PKD in 1989 when pregnant with my first child (the disease was diagnosed on my first pre-natal ultrasound). My only prior symptom was slightly elevated blood pressure. I had never heard of the disease, and on learning that it is a hereditary disease, I researched its’...

Lisa Werner, London ON

My name is Lisa Werner. My twin sister and I were born with polycystic kidney and liver disease (PKD1), a genetic disorder, but I wasn’t diagnosed until the age of 29. I received a kidney and liver transplant on November 16, 2020. The liver team removed my 35 pound liver,...

Jennifer Morgan, Halifax NS

"I remember how scared I felt on that drive and because of Covid-19 restrictions, my husband wasn’t allowed to come in with me. The next few days were a whirlwind – so many tests and doctors, followed by an eventual diagnosis of PKD."

Kristen Walsh, Lamaline NL

"Inspirational stories used to be just stories to me. We've all seen and heard them - you listen to a story about someone who has lost a limb, had a incurable diagnosis, lost their husband or wife, or had some form of tragedy and how they readjusted to their life."...

Clayton Rafuse, AB

My name is Clayton and I am a 23 year-old Paramedic living In Alberta. March of 2020 I lost my father, Pete Rafuse, to PKD. PKD is an illness my father lived with for the majority of his life without issue.  His doctor’s care plan was to monitor and see...

Marie-Pierre Schryburt, Ottawa ON

Marie-Pierre Schryburt- In 1998, my mother received the news that would change her life forever. Her baby boy had autosomal recessive polycystic kidney disease (ARPKD). This disease would affect his kidney function and cause him to require dialysis or a kidney transplant in the future. However the future wasn’t promised. In...

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