"PKD was not spoken of when I was a child. My father inherited the disease from his father (my grandfather) who died before I was born, and no one else in the family had it. I have been in touch, in recent years, with extended family on my father’s side,...
Cristina Mageau has been fundraising for the Montreal Walk to END PKD for three years, and this year her team - Team Verdun - raised more than $11,000 for the Walk to END PKD! What advice to they have for others looking to raise a large amount?
The Fort Erie team, A Family Affair, has raised more than $8,000 this year for the Toronto Walk to END PKD. How did they manage to raise such a large amount? Do they have any suggestions for other families wanting to do the same thing? Continue reading their story for...
This year the team The Beaton PKD Path raised more than $9,500 for the Walk to END PKD held in Halifax, NS. Congratulations! Read their story here.
"I was diagnosed with PKD at the age of 21. If I had to describe my reaction to my diagnosis in three words, they would be: fear, acceptance, and anger."
"The last time I shared part of my ARPKD journey on this platform was back in July 2020. Since then, so much has changed in my life – but mostly my journey has taken great turns."
"Hello, everyone! I’m grateful to provide this update on my journey since I initially shared my story here in December 2021. Last May, I received a new kidney, thanks to the Live Kidney Paired Donation Program."
Back in April, Canadian PKD patient and transplant recipient Jan Ehlert participated in the World Transplant Games in Perth, Australia, where she joined 1500 athletes of all ages (organ recipients, living donors, or donor family members) in a variety of competitive events.
Polycystic kidney disease (PKD) is no stranger to Colin Grieve. Colin grew up surrounded with people battling PKD; including his father, uncle and grandmother. Colin had his battles as a child, a youth, and as an adult. He has memories of spending time in the IWK Health Centre in Halifax,...
"I believe in the power of advocacy, support and hope. My name is TJ Sullivan, and while I may not have polycystic kidney disease (PKD), the effects of this disease hits close to home, and the cause to fund research and a cure is incredibly close to my heart. My...