PKD News

Ciara Morin, Toronto ON | Voices of PKD

"My name is Ciara ("Kee-ra") and I'm a Registered Holistic Nutritionist in Toronto, Ontario, Canada with a real passion for kidney health. I was diagnosed with Polycystic Kidney Disease (PKD) at 17, halfway through my final year of high school. The disease is prevalent in my family and I knew there...

Mario Laureti, Gatineau QC | Voices of PKD

"Even though I dislike writing, I would like to share these results to give hope to other people with polycystic kidney disease (PKD). About 15 years ago, I had a scan because of acute appendicitis. The scan also revealed many polyps and cysts."

Wilma Haas, Edmonton AB | Voices of PKD

"I was diagnosed with PKD in 1989 when pregnant with my first child (the disease was diagnosed on my first pre-natal ultrasound). My only prior symptom was slightly elevated blood pressure. I had never heard of the disease, and on learning that it is a hereditary disease, I researched its’...

Lisa Werner, London ON | Voices of PKD

My name is Lisa Werner. My twin sister and I were born with polycystic kidney and liver disease (PKD1), a genetic disorder, but I wasn’t diagnosed until the age of 29. I received a kidney and liver transplant on November 16, 2020. The liver team removed my 35 pound liver,...

Jennifer Morgan, Halifax NS | Voices of PKD

"On December 29th 2020, I went for what I thought was just a routine blood work check up. Our family had been on a waitlist to find a family doctor for a few years and we finally were matched. Our new doctor sent me for blood work while she waited...

Kristen Walsh, Lamaline NL | Voices of PKD

"Inspirational stories used to be just stories to me. We've all seen and heard them - you listen to a story about someone who has lost a limb, had a incurable diagnosis, lost their husband or wife, or had some form of tragedy and how they readjusted to their life."...

Clayton Rafuse, AB | Voices of PKD

"My name is Clayton, and I am a 23-year-old paramedic living in Alberta. In March of 2020 I lost my father, Pete Rafuse, to PKD. PKD is an illness my father lived with for the majority of his life without issue. His doctor’s care plan was to monitor and see...

Tetyana Walker, Winnipeg MB | Voices of PKD

My name is Tetyana and I wanted to share my PKD story with you. I found out I had PKD at 22 at an emergency department here in Winnipeg MB. It was discovered by mistake. I had absolutely no knowledge what PKD was or how serious it is. I didn’t...

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