"My name is Mary, and here is a bit about my journey. When I was 25, my doctor told me they found cysts on my kidneys, and that I had PKD. At the age of 54, I was told it was time for dialysis. When I was 57, one of my nieces,...
"My name is Karen, and this story is about my journey with polycystic kidney disease (PKD). I was diagnosed at the age of 18. I knew it was a condition that not only threatened my own health, but also had the potential to be passed on to my children. This...
"Hello, my name is Kelly Konieczny. I first shared my PKD story with this community in September of 2022. At the time, my kidneys had failed (one had been completely removed) and I was on dialysis four or five times per week, waiting for a kidney donation. I'm still waiting....
"My name is Monique, and this is my story about being a living kidney donor. My husband David and I are both 58. David has PKD, as does one of our children (that we know of). There's a lot of PKD in my husband's family. David is one of five...
"I always knew I wanted to have kids. Planning a family is perhaps one of the most exciting chapters of life. It's a time full of excitement, yearning, and daydreaming. It's when two people come together from different backgrounds, with different stories, to plan for a future that includes mini-versions of...
"I was diagnosed with PKD at age 11, and I’m now 42. I've lost 6 out of 9 of my family members to this disease, including my mom at age 45." Nina has been involved with the PKD Foundation of Canada for several years, having founded our Corner Brook, NF,...
"PKD was not spoken of when I was a child. My father inherited the disease from his father (my grandfather) who died before I was born, and no one else in the family had it. I have been in touch, in recent years, with extended family on my father’s side,...
"I was diagnosed with PKD at the age of 21. If I had to describe my reaction to my diagnosis in three words, they would be: fear, acceptance, and anger."
"The last time I shared part of my ARPKD journey on this platform was back in July 2020. Since then, so much has changed in my life – but mostly my journey has taken great turns."
"Hello, everyone! I’m grateful to provide this update on my journey since I initially shared my story here in December 2021. Last May, I received a new kidney, thanks to the Live Kidney Paired Donation Program."