Susan, AB | Voices of PKD
"Hello, my name is Susan. My journey with PKD began in my 20’s, when I was told I had a few cysts on my kidneys. I was told that having a few cysts was not unusual, and not to be concerned."
Omar's Story | Voices of PKD
My name is Omar, and I was diagnosed with PKD almost two years ago. I'm currently 22 years old, and I knew nothing about PKD before I was diagnosed. For three or four years prior to my diagnosis, I was experiencing severe headaches, and after I changed my family doctor, I...
Kim Holowatiuk, AB | Voices of PKD
"My name is Kim Holowatiuk, and I was diagnosed with PKD when I was 17 years old. At the time, I had two cysts on one kidney, one cyst on the other, and one liver cyst. (Those were the good ol’ days.) 😉"
Clayton Rafuse, AB | Voices of PKD
"My name is Clayton Rafuse, and I first shared my story with the PKD community in August 2021. My father Pete had PKD, and passed away in March of 2020."
Eric Hampel | Voices of PKD
"Climbing Mount Kilimanjaro has been on my bucket list for over a decade now. It’s one of the world's most iconic climbs. I was recently inspired by a few articles highlighting people combining adventure and charity, and decided that climbing Mount Kilimanjaro would be the next step in my journey...
Mary and Amanda, London ON | Voices of PKD
"My name is Mary, and here is a bit about my journey. When I was 25, my doctor told me they found cysts on my kidneys, and that I had PKD. At the age of 54, I was told it was time for dialysis. When I was 57, one of my nieces,...
Karen Murkovic, Oakville ON | Voices of PKD
"My name is Karen, and this story is about my journey with polycystic kidney disease (PKD). I was diagnosed at the age of 18. I knew it was a condition that not only threatened my own health, but also had the potential to be passed on to my children. This...
Kelly Konieczny, AB | Voices of PKD
"Hello, my name is Kelly Konieczny. I first shared my PKD story with this community in September of 2022. At the time, my kidneys had failed (one had been completely removed) and I was on dialysis four or five times per week, waiting for a kidney donation. I'm still waiting....
Monique Marsh, Aurora ON | Voices of PKD
"My name is Monique, and this is my story about being a living kidney donor. My husband David and I are both 58. David has PKD, as does one of our children (that we know of). There's a lot of PKD in my husband's family. David is one of five...
Ciara Morin, Toronto ON | Voices of PKD
"I always knew I wanted to have kids. Planning a family is perhaps one of the most exciting chapters of life. It's a time full of excitement, yearning, and daydreaming. It's when two people come together from different backgrounds, with different stories, to plan for a future that includes mini-versions of...