Marie-Pierre Schryburt, Ottawa ON | Voices of PKD
"The last time I shared part of my ARPKD journey on this platform was back in July 2020. Since then, so much has changed in my life – but mostly my journey has taken great turns."
Jennifer Morgan, Halifax NS | Voices of PKD
"Hello, everyone! I’m grateful to provide this update on my journey since I initially shared my story here in December 2021. Last May, I received a new kidney, thanks to the Live Kidney Paired Donation Program."
Jan Ehlert: One PKD Patient’s Journey to the 2023 World Transplant Games | Voices of PKD
Back in April, Canadian PKD patient and transplant recipient Jan Ehlert participated in the World Transplant Games in Perth, Australia, where she joined 1500 athletes of all ages (organ recipients, living donors, or donor family members) in a variety of competitive events.
Brittany Hay and Colin Grieve | Voices of PKD
Polycystic kidney disease (PKD) is no stranger to Colin Grieve. Colin grew up surrounded with people battling PKD; including his father, uncle and grandmother. Colin had his battles as a child, a youth, and as an adult. He has memories of spending time in the IWK Health Centre in Halifax,...
TJ Sullivan | Voices of PKD
"I believe in the power of advocacy, support and hope. My name is TJ Sullivan, and while I may not have polycystic kidney disease (PKD), the effects of this disease hits close to home, and the cause to fund research and a cure is incredibly close to my heart. My...
Judith Belair-Kyle, Montreal QC | Voices of PKD
"Hi! It’s me, Judith, who told my story here almost a year ago. Since that time, a lot of things have changed. I am now transplanted with a new kidney, which a stranger gave to me thanks to my search for a donor on social media! I was asked to...
Christina Meyer | Voices of PKD
"My name is Christina Meyer and I was diagnosed with autosomal dominant polycystic kidney disease (ADPKD) when I was 18 years old. It was an accidental finding during an ultrasound, and it was then that it came to light that I had cysts on my kidneys. Realizing that it is...
Jan Robertson, Newmarket ON | Voices of PKD
"We all share a very special bond as PKD patients and transplant recipients. We immediately become friends whenever our paths cross, whether online or in-person. I have seen so many miracles over the last 25 years. Each one makes me smile and helps heal my heart."
Luisa Miniaci-Di Leo, Dollard-des-Ormeaux QC | Voices of PKD
"In October, two cysts on my left kidney ruptured. Had it not been for some PKD patients encouraging me, I would never have written this. They suggested I write down my journey because they too have been through this before. They wanted me to educate those who do not understand...
Eric Hampel | Voices of PKD
"My PKD journey, like many people’s, started when I was 18, with an ultrasound to diagnose whether I had inherited PKD. My mom’s side of the family had been identified as having PKD since my late grandfather had a stroke in his 20s and passed away in his mid-30s (both...