"My PKD journey, like many people’s, started when I was 18, with an ultrasound to diagnose whether I had inherited PKD. My mom’s side of the family had been identified as having PKD since my late grandfather had a stroke in his 20s and passed away in his mid-30s (both...
"Hello, my name is Kelly Konieczny. I am a daughter, sister, auntie, wife and mother in my family and a friend to many. I live in a small farming community in Alberta and am currently on medical leave from an Educational Assistant position I held for 25 years. This is...
"My name is Ciara ("Kee-ra") and I'm a Registered Holistic Nutritionist in Toronto, Ontario, Canada with a real passion for kidney health. I was diagnosed with Polycystic Kidney Disease (PKD) at 17, halfway through my final year of high school. The disease is prevalent in my family and I knew there...
"Even though I dislike writing, I would like to share these results to give hope to other people with polycystic kidney disease (PKD). About 15 years ago, I had a scan because of acute appendicitis. The scan also revealed many polyps and cysts."
PKD Foundation of Canada's Edmonton Chapter Coordinator, Sonia Chies, has become well-versed in running DIY fundraisers! Read more to learn about her most recent fundraising activities.
"My name is Judith, I am 35 years old, I live in Quebec and I have polycystic kidney disease (PKD). I am of Quebec and American origin."
"I was diagnosed with PKD in 1989 when pregnant with my first child (the disease was diagnosed on my first pre-natal ultrasound). My only prior symptom was slightly elevated blood pressure. I had never heard of the disease, and on learning that it is a hereditary disease, I researched its’...
My name is Lisa Werner. My twin sister and I were born with polycystic kidney and liver disease (PKD1), a genetic disorder, but I wasn’t diagnosed until the age of 29. I received a kidney and liver transplant on November 16, 2020. The liver team removed my 35 pound liver,...
"On December 29th 2020, I went for what I thought was just a routine blood work check up. Our family had been on a waitlist to find a family doctor for a few years and we finally were matched. Our new doctor sent me for blood work while she waited...
"Inspirational stories used to be just stories to me. We've all seen and heard them - you listen to a story about someone who has lost a limb, had a incurable diagnosis, lost their husband or wife, or had some form of tragedy and how they readjusted to their life."...