Luisa Miniaci Di-Leo
Chapter & Walk Coordinator

Hello! My name is Luisa Miniaci-Di Leo, and I’m the Montreal Chapter and Walk Coordinator for the PKDFOC.  Following an investigation into another health issue, at the age of 34, I was diagnosed with polycystic kidney disease(PKD). I am now 61 years old.

As coordinator, I have used my knowledge and skills in order to raise awareness and research funds towards a cure. This has also allowed me to meet some amazing people facing the same battle.

We have some high caliber individuals doing research on PKD and I sincerely believe that with their efforts our future will improve. Our chapter understands the importance of pursuing research for and education on PKD and we are continuously working to strengthen our community with the help of dedicated volunteers.

The Montreal Chapter is looking forward setting up more educational and social events this year. We are focusing our efforts on getting help for our community and acknowledging all those affected by PKD. Thank you for your support and we look forward to you joining us at our next meeting or event!

PKD Foundation of Canada Chapters are led by volunteers who want to make a difference in the fight to end PKD! Contact us today to find out how you can get involved with the Montreal Chapter. Stay connected with us on Facebook.

Upcoming Events

We are in between events, but please continue to check back! You can see our full event schedule for the Foundation here. If you’re looking for local resources, reach out to your chapter coordinator or contact us at

Past Events


PKD Awareness Day: Video Challenge

Are you ready to take on the challenge? Help spread the word about PKD Awareness Day and what it's like to live with polycystic kidney disease! Record a short video with your smartphone and tell us your story...

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