Hello! My name is Luisa Miniaci-Di Leo, and I’m the Montreal Chapter and Walk Coordinator for the PKDFOC. Following an investigation into another health issue, at the age of 34, I was diagnosed with polycystic kidney disease(PKD). I am now 61 years old.
As coordinator, I have used my knowledge and skills in order to raise awareness and research funds towards a cure. This has also allowed me to meet some amazing people facing the same battle.
We have some high caliber individuals doing research on PKD and I sincerely believe that with their efforts our future will improve. Our chapter understands the importance of pursuing research for and education on PKD and we are continuously working to strengthen our community with the help of dedicated volunteers.
The Montreal Chapter is looking forward setting up more educational and social events this year. We are focusing our efforts on getting help for our community and acknowledging all those affected by PKD. Thank you for your support and we look forward to you joining us at our next meeting or event!
The PKD Foundation of Canada Chapters are led by volunteers who want to make a difference in the fight to end PKD. We are currently recruiting key volunteers to help with our efforts this year! If you live in the area and are interested in joining our national network of volunteers, visit endpkd.ca/get_involved to sign up!