Hello! My name is Luisa Miniaci-Di Leo, and I’m the Montreal Chapter and Walk Coordinator for the PKDFOC. Following an investigation into another health issue, at the age of 34, I was diagnosed with polycystic kidney disease(PKD). I am now 61 years old.
As coordinator, I have used my knowledge and skills in order to raise awareness and research funds towards a cure. This has also allowed me to meet some amazing people facing the same battle.
We have some high caliber individuals doing research on PKD and I sincerely believe that with their efforts our future will improve. Our chapter understands the importance of pursuing research for and education on PKD and we are continuously working to strengthen our community with the help of dedicated volunteers.
The Montreal Chapter is looking forward setting up more educational and social events this year. We are focusing our efforts on getting help for our community and acknowledging all those affected by PKD. Thank you for your support and we look forward to you joining us at our next meeting or event!
PKD Foundation of Canada Chapters are led by volunteers who want to make a difference in the fight to end PKD! Contact us today to find out how you can get involved with the Montreal Chapter. Stay connected with us on Facebook.
ADPKD is the most common inherited renal disorder worldwide, impacting approximately 1 in every 500 Canadians. An estimated 45% to 70% of patients with ADPKD progress to end-stage renal disease by age 65 years.Read more