Resource Centre

Thank you for your interest in learning more about polycystic kidney disease (PKD) and the PKD Foundation of Canada. Check out the resources listed below and feel free to contact us with your questions! 

What's new?

Introducing our newest resource: a guide for having a conversation with your adult children about your PKD diagnosis.

Having a conversation with your adult children about your PKD diagnosis


We've also adapted some of the contents of this booklet to help support other kinds of family PKD conversations, including this blog about planning to have a PKD conversation with your family.


The 2023 PKD Summit


Watch our series of patient vignettes on YouTube


Click on the images below to read online or contact us to obtain a printed copy by mail.

Your Guide to Living with Polycystic Kidney Disease (Pamphlet)


Polycystic Kidney Disease: What Every Family Needs to Know (Pamphlet)


ARPKD (Pamphlet)

ADPKD Patient Forum: Questions, answers and discussions about living with ADPKD (Presentation Slides)

Polycystic Kidney Disease: Disease Background

What is PKD? What does the PKDFOC do?

Don’t see what you’re looking for? To order PKD educational materials and to find out what support is available, contact the PKD Foundation of Canada by emailing [email protected] or calling 1-877-410-1741.

Our phone lines are connected to our automated answering machine, which is monitored daily. Please allow one business day for a response.

Please note: The PKD Foundation of Canada does not employ any medical professionals and as such, cannot answer specific medical questions or questions related to individual healthcare. For specific questions regarding your health, please consult a nephrologist.