If you’re searching for information about polycystic kidney disease (PKD), you’re in the right place.
PKD is a genetic kidney disease that affects thousands of families across Canada. Whether you were just diagnosed with PKD, are living with PKD, or are supporting someone who has polycystic kidney disease, this page will help you find clear, trusted information and support — without feeling overwhelmed.
Take a breath. You don’t need to learn everything today.
What is PKD?
Polycystic kidney disease (PKD) is a hereditary condition that causes fluid-filled cysts to grow in the kidneys. Over time, these cysts can affect kidney function.
There are two main types:
- Autosomal dominant polycystic kidney disease (ADPKD), usually diagnosed in adulthood
- Autosomal recessive polycystic kidney disease (ARPKD), often diagnosed in childhood
If you’re wondering:
- What causes PKD?
- Is PKD hereditary?
- What are common PKD symptoms?
- How does PKD progress over time?
You're in the right place.
Newly diagnosed with PKD
A new diagnosis of polycystic kidney disease can bring shock, questions, or uncertainty. All of that is normal.
If you’ve recently been diagnosed with PKD, you may be looking for:
- A simple explanation of PKD symptoms and progression
- Information about genetic testing and screening
- Help talking with family about hereditary kidney disease
- Guidance on finding a PKD specialist
- Emotional and mental health support
Living with PKD
Many people live full and active lives with polycystic kidney disease for decades. Managing PKD symptoms, monitoring kidney function, and protecting overall kidney health are part of that journey.
Explore resources on:
- PKD nutrition and kidney-friendly eating
- Managing pain and other PKD symptoms
- Understanding kidney lab tests
- Mental health and coping with chronic kidney disease
- Peer support for people living with PKD
Planning for the future
Because PKD is genetic, many families have questions about family planning, pregnancy, and the risk of passing polycystic kidney disease to children.
As kidney function changes, you may also have questions about dialysis, kidney transplant, and living kidney donation.
PKD Family Planning & Genetics
Kidney Transplant & Dialysis with PKD
Find PKD support and community
Living with a genetic kidney disease can feel isolating. You don’t have to navigate polycystic kidney disease alone.
We offer:
- A private online PKD community (MyPKD.ca)
- Peer support groups
- Educational webinars about PKD
- Mental health conversations for people affected by PKD
- Real stories from patients and families
About Us
The PKD Foundation of Canada provides trusted information about polycystic kidney disease, patient education, community support, and funding for research into better treatments and a cure.
We are here to support people affected by PKD at every stage — from diagnosis to transplant and beyond.
Start where you are. We’ll meet you there.