My name is Anastacia, and I am a 22 year old young woman. I, along with my mother and older brother, have ADPKD. My mother was diagnosed with ADPKD when she was 24 years old, shortly after I was born. Due to my mother’s adoption, she knew nothing of her...
I am a young 67-year-old mom and grandmother to a son, daughter and four beautiful grandchildren. My preliminary diagnosis was around the age of 20, with confirmation when my kidney was removed at the age 40.After years of pain and kidney infections leading up to my young adult years, my...
Hailey-Ann is a vivacious 4.5 year-old girl who loves life. When I was only 21-weeks pregnant with her, my pregnancy went from one of joy and wonder to one of fear and uncertainty. That is because at my 21-week ultrasound with our high-risk team they discovered that my unborn child...
I was diagnosed with PKD in 2003 at the age of 33. My diagnosis was a shock as I didn’t know of any family members being affected. I reached out to my father’s family in BC, who we had never met, and discovered that my cousin had been diagnosed around the same...
I am 49 years old and I was diagnosed with PKD after our youngest of 3 children was born. I had never heard of PKD before my diagnosis. My parents don’t have it so I mutated the gene. When our girls got older, we had them tested by ultrasounds and...
My name is Theresa Gray-Gunn. In 1968, my Dad passed away from a brain aneurysm. My Mom was brave enough to donate his body to science for research and that is when they discovered that his aneurysm was caused by PKD...
Helping to raise PKD awareness is an important and sensitive topic for me, based on how I have seen this often fatal disease devastate many people’s lives. My sister-in-law’s father suffered from PKD and waited on a transplant list for several years without ever finding a match. It is believed...
Thirty-seven years ago, I received the diagnosis that I had polycystic kidney disease and my life changed instantly that day. I had no idea that I was ill, let alone had a chronic kidney disease. I did not know anything about PKD or anyone that was affected by it.