April 2020 PKD e-News
Welcome to the PKD Foundation of Canada's April e-News! We have provided information important to helping you take action in your journey with PKD
National Organ and Tissue Donation Awareness Week
This year for NOTDAW (National Organ and Tissue Donation Awareness Week) We are asking all Canadians to show their support for organ and tissue donation from April 19 – 25. We encourage all Canadians to register their decision to become organ and tissue donors and share their decision with their...
Two Upcoming Webinars Regarding Covid-19 and Dialysis Patients
Today, April 9th at 4:00pm EST, join us in watching webinars about the management of dialysis patients during covid-19 and participate in asking questions to Canada's leading nerphrologists on April 15th at 12:15pm EST!
Coronavirus and PKD
What You Should Know: Coronavirus Disease 2019 (COVID-19) is thought to spread mainly from person-to-person contact. Older adults and people with serious chronic medical conditions, including kidney disease, seem to be at higher risk for more serious illness. Therefore, it is especially important for people with PKD to take actions to reduce...
Join the 31 Days of PKD Challenges!
Join the 31 Days of PKD Challenges! Kidney Month is recognized in March across Canada and the United States. We spend this time raising awareness of the importance of our kidneys to our overall health, and to reduce the frequency and impact kidney disease and its associated health problems have...
"Donor Found" - Written by Michael Coyle, Burnaby BC
Hello friends, good news to share. As the title says, a kidney donor has been found.I’ve been holding off talking about this for a few months now. The disease makes me exhausted, and for some reason the prospect of writing this note felt too much to tackle. I also want...
Rare Disease Day 2020: We Are the 300 Million!
February 29th, 2020 is Rare Disease Day! Show your support by learning about actions you can take in order to raise awareness.
Facebook Live: Interview with Dr. Bollée (Nephrologist and Director of the Kidney Rare Disease Clinic at the IRCM) on March 11th at 2pm
Ahead of World Kidney Day on March 12th 2020, Montreal Chapter Coordinator, Luisa Miniaci-Di Leo has been invited by Dr. Bollée to talk about PKD live on Facebook from his office at IRCM (Institut de Recherches Cliniques de Montréal) on March 11 at 2pm.
Rare Disease Research Day 2020 at the Research Institute of the McGill University Health Centre
As part of the patient advocacy groups in Montreal, Luisa Miniaci-Di Leo was invited to participate in the “Rare Disease Research Day” at the McGill University Health Centre.
