Media and News

Phouvieng Sackda, Toronto ON | Voices of PKD

Meet Phouvieng Sackda, a true inspiration in the PKD community. From navigating dialysis to celebrating the gift of a kidney transplant, Phouv shares his journey with authenticity and hope. He also offers heartfelt advice to his daughters about embracing life while managing their PKD diagnosis.

Eating Well with PKD When Life Gets Busy | Kidney Nutrition

Living with PKD means paying attention to what you eat, but it doesn’t have to mean spending hours in the kitchen or cooking different meals for your family. When life gets busy - and it often does - it helps to have simple, flexible food strategies that protect your kidneys...

September is Brain Aneurysm Awareness Month

If you’ve never heard of aneurysms before, or if you’ve only heard the word in passing, don’t worry. You’re not alone. Today, let’s take a deep dive into what aneurysms are, why they matter for people with PKD, and what you can do to stay proactive about your health.

August 2025 Issue | PKD e-News

This month we have information about PKD Awareness Day, the latest on the Walk to END PKD, how to eat out with PKD, and more!

Patient Partner Experiences | Webinar Video

Watch this inspiring 1-hour roundtable featuring the voices of four diverse PKD patients who have stepped up as patient partners - using their lived experiences to influence research, improve care, and advocate for meaningful change across Canada.

Smart Strategies for Eating Out with PKD

Craving a break from cooking? Eating out can be tricky when you have polycystic kidney disease (PKD), but it doesn’t have to be, and you can still stay on track. In this month’s blog, registered dietician and certified diabetes educator Emily Campbell shares smart strategies to help you navigate restaurant...

Maria Parrella-Ilaria, Sault Ste. Marie ON | Voices of PKD

"My name is Maria, and I am a visual artist and former art therapist/arts educator, currently living in Sault Ste. Marie, Ontario, with my husband—author and musician Mark—and our two bossy felines. These days, I’d describe myself as persistent, determined, stubborn, and grateful."

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