Happy Holidays
Season's greetings to you and yours from the PKD Foundation of Canada!
November 2017 PKD e-News
Check out the PKD Foundation of Canada's November e-News! We have provided information important to helping you take action in your journey with PKD.
Cheri Barton, Vankleek Hill ON | Voices of PKD
"I am 49 years old, and I was diagnosed with PKD after our youngest of 3 children was born. I had never heard of PKD before my diagnosis. My parents don’t have, it so I mutated the gene. When our girls got older, we had them tested by ultrasounds, and...
PKD Foundation of Canada Board Member Jarrett Osborne Invites You to the 2017 Canadian PKD Symposium!
Meet Jarrett, whose son was born with polycystic kidney disease. Since attending the Canadian PKD Symposium in Toronto in 2015, Jarrett has become one of our board members and part of our community.
REPRISE Study Results and Expert Reactions
The REPRISE study was conducted in late-stage ADPKD patients with chronic kidney disease as part of the tolvaptan clinical development program. It enrolled over 1,300 patients from 213 centres across 21 countries, including 6 centres in Canada.
The New England Journal of Medicine Publishes Phase 3 Results for Tolvaptan in Patients with ADPKD
We are pleased to share some encouraging news regarding the treatment landscape for those living with ADPKD. Today, Otsuka announced results from their Phase 3 REPRISE trial of tolvaptan in patients with autosomal dominant polycystic kidney disease (ADPKD). This data was presented at the American Society of Nephrology (ASN) Conference...
Theresa Gray-Gunn, Barrie ON | Voices of PKD
"My name is Theresa Gray-Gunn. In 1968, my Dad passed away from a brain aneurysm. My Mom was brave enough to donate his body to science for research, and that is when they discovered that his aneurysm was caused by PKD."
October 2017 PKD e-News
Check out the PKD Foundation of Canada's October e-News! We have provided information important to helping you take action in your journey with PKD and revisit the amazing fundraisers that have taken place over the past year.
2017 Walk to END PKD Campaign Wrap Up
Since 2007, the PKD Foundation of Canada has raised over $1M for critical PKD research, education, advocacy and awareness through our Walk to END PKD campaign! Truly an amazing feat for our grassroots organization.
Mark Nicastro, Chippawa ON | Voices of PKD
"Helping to raise PKD awareness is an important and sensitive topic for me, based on how I have seen this often fatal disease devastate many people’s lives. My sister-in-law’s father suffered from PKD and waited on a transplant list for several years without ever finding a match. It is believed...