Media and News

PKD Awareness Day 2016

Once again, Health Canada is recognizing September 4th as National Polycystic Kidney Disease (PKD) Awareness Day – a special day devoted to raising awareness of this life-threatening, genetic disease.

August 2016 PKD e-News

Awareness    Health Canada Recognizes September 4th as National PKD Awareness Day 

ADPKD Online Survey Invitation closes at 11:59pm on Monday August 8, 2016

Are you aged 18-60 years and have been diagnosed with autosomal dominant polycystic kidney disease?  If so, we really need your help.   The market research survey among people aged 18-60 years who have been diagnosed with autosomal dominant polycystic kidney disease (ADPKD) will close at 11:59pm on Monday August 8,...

Online Registration for the 2016 Walk for PKD is Now Open!

Registration for the 2016 Walk for PKD is now open!     The Walk for PKD signifies a united group, moving towards treatments and a cure for polycystic kidney disease (PKD), one of the most common life-threatening genetic diseases affecting thousands in Canada.  You can make an impact on this...

Participation Request for ARPKD International Studies

Do you have a child with ARPKD?   The University of Alabama at Birmingham Hepato/Renal Fibrocystic Disease Core Centre (UAB HRFDCC) has developed a unique set of clinical, genetic and educational resources for ARPKD. Autosomal recessive polycystic kidney disease (ARPKD) and other hepato-renal fibrocystic diseases (HRFD) are relatively rare recessive disorders,...

Do you have a child with ARPKD?

The University of Alabama at Birmingham Hepato/Renal Fibrocystic Disease Core Centre (UAB HRFDCC) has developed a unique set of clinical, genetic and educational resources for ARPKD. Autosomal recessive polycystic kidney disease (ARPKD) and other hepato-renal fibrocystic diseases (HRFD) are relatively rare recessive disorders, but constitute an important set of childhood...

June 2016 PKD e-News

SUPPORT   Register Today for the 2016 Walk for PKD! The Walk for PKD signifies a united group, moving towards treatments and a cure for polycystic kidney disease (PKD), one of the most common life-threatening genetic diseases affecting thousands in Canada.  You can make an impact on this devastating disease...

May 2016 PKD e-News

SUPPORT   Save the Date! The 2016 Walk for PKD Online Registration Opens June 8!    We are thrilled to be hosting Walk for PKD events in Guelph, Montreal, Toronto and Ottawa this year!   The Walk for PKD signifies a united group, moving towards treatments and a cure for...

April 2016 PKD e-News

LEARN Upcoming Toronto Chapter Educational Meeting:    Topic: Ethical Controversies in Organ Donation and Transplantation  Speaker: Michael Campbell, Former Senior Fellow in Organ Donation &  Transplantation Ethics, University Health Network Bioethics Program When: Sunday, May 1 2016 from 2:00pm-4:00pm Where: Beth Sholom Synagogue, 1445 Eglinton Avenue West, Toronto ON. For full details, click here.

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