November 01, 2015

October 2015 PKD e-News

Our group went to Queen’s Park with one goal in mind: to raise awareness of PKD among our provincial decision-makers. With the recent approval of JINARC by Health Canada, we were happy to discuss treatments for PKD, and we expressed our hope that, upon provincial approval, JINARC will quickly be made available to patients that could benefit from it.
Read more here.


PKD Foundation of Canada Board members, staff and volunteers raised their voices for the PKD community at Queen’s Park on October 7th 2015.


There’s Still Time to Register for the 2015 Canadian PKD Symposium

When:Saturday, November 28th, from 7:30am – 4:00pm
Where:Sheraton Toronto Airport, 801 Dixon Rd, Toronto ON.      
The PKD Foundation of Canada invites you to join us for the 2015 Canadian PKD Symposium being held at the Sheraton Toronto Airport Hotel on Saturday, November 28th 2015.
The symposium is open to the public and will include participants from the PKD medical community and various renal healthcare centres, as well as PKD patients, their families and loved ones.
With the Foundation’s support and that of our partners, we are planning a day filled with valuable information and subject matter relevant to those affected by PKD. We will be hearing from top Canadian and International Key Opinion Leaders in the field; learning about important ways to manage various aspects of one’s PKD diagnosis.
Topics will include:
  • Eating Healthy with PKD
  • Living with PKD
  • Understanding Autosomal Recessive PKD
  • What’s New in PKD Research
  • Question & Answer Period with Our Guest Speakers
We invite you to view the Objectives page to learn more about this exciting event.
You can register online below to confirm your participation. Light breakfast, snacks, lunch and beverages will be provided throughout the day.
Register Now!
There is a $25 fee to attend this event and online registration will close November 16th.
The PKD Foundation of Canada looks forward to seeing and hearing from you during the 2015 Canadian PKD Symposium as we work together to improve PKD awareness and patient care.


The Emotional Toll of PKD Webinar Available Online
In this free webinar, presented by Margot Troutt-Keys, LCSW and Alexis Denny, PKD Foundation-USA, you will learn about the emotional toll PKD takes on a person and their family, while also learning tips for coping and staying positive in the face of health adversity.
Watch this free webinar here.

Upcoming Hamilton Chapter Information Meetings

Topic:The Stages of Care Giving and Caregiver’s Experiences
Hamilton Chapter Logo
Speakers: Sara Shearkhani & Carole Ann Alloway (Co-founders of Family Caregivers Voice); Don Kraemer (Husband and caregiver)
When: Sunday, November 8th 2015from 2:00pm – 4:00pm
Where: Classroom B (T2208), 2nd Floor – Juravinski Innovation Tower, St. Joseph’s Healthcare Hamilton, 50 Charlton Avenue East, Hamilton ON. L8N 4A6
For more information on this first meeting, click here.


PKD Health Notes with Renal Dietician, Kelly Welsh: Halloween Health Hazards
Halloween is here! For many, October 31st marks the beginning of holiday eating and many diet temptations. Eating candy is not only for holidays such as Halloween. Sweets are enjoyable all year round. Candy seems to be everywhere, especially now. For people with chronic kidney disease (CKD), who have been told to limit certain things in their daily diets, some candies may be too high in phosphorus, potassium or sodium. But that doesn’t mean you shouldn’t treat yourself every now and then. There are some candies that are better choices than others. Planning ahead, knowing your labs and setting goals are your best bets to ensure you are starting out the holiday season right.
You can read Renal Dietician, Kelly Welsh’s full blog post here.



New Blog Post: PKD Will Not Beat Me

Valen Cover

On Halloween, when surrounded by delicious temptations everywhere you look, Valen reminds us that the key to healthy living is to enjoy these festive treats in moderation.
Read Valen’s full blog post here.
PKD Will Not Beat Me is an inspirational place for those seeking a positive environment to meet others with polycystic kidney disease (PKD) – to share stories, to ask questions and to make life-long friendships, encouraging each other to live positively along the way! PKD Will Not Beat Me is written by PKD patient and transplant recipient Valen Keefer.