August 2025 Issue | PKD e-News
Welcome to the August e-News from the PKD Foundation of Canada! This month we have information about PKD Awareness Day, the latest on the Walk to END PKD, how to eat out with PKD, and more!
Let’s Go Teal for PKD!
Thursday, September 4th is PKD Awareness Day! Here's a toolkit of resources to help you make the most of Sept 4th, and spread the word about polycystic kidney disease.
- Connect with others in the PKD community
- Inspire compassion for those affected by PKD
- Advocate for PKD support
- Motivate others to take action and drive progress in ending PKD
40% of the Way to Our Goal!
Raise $200 for the Walk to END PKD by August 18 (that's next Monday!), and earn a special-edition Walk to END PKD hat!
Register or update your team today!
New! 50/50 Raffles
If you live in Ontario or Nova Scotia, why not try your luck at one of our new 50/50 raffles?
Buy your tickets to get a chance to win 50% of the pot, while 50% goes to support kidney patients!
Nova Scotia 50/50 Renal Raffle
New Research Study
PKD Awareness Day is coming - here’s one way to take action.
The MAPLE study is looking for Canadians with ADPKD to help test a possible treatment.
If you’re between 25 and 65 and live in or near Ontario or Quebec, this could be your chance to support real change.
Shaping Kidney Care
The video recording of our July webinar is now up on our YouTube channel!
Hear Phaydy, Brenda, Nick and Scott share their personal experiences as both PKD patients, and patient partners.
Maria's Transplant Story
Our latest Voices of PKD contribution comes from Maria, who had her kidney transplant in May 2024.
Read how she approached her surgery and recovery one day at a time.
Spotlight On Living Donation
For those in need of a kidney or liver transplant, living organ donation may offer a shorter pathway to better health - providing faster access to transplant, and a quicker recovery.
Living Donation Week - September 7-13, 2025 - is an annual awareness week featuring free events and activities focused on raising awareness about living organ donation.
For those searching for a living donor, or wanting to learn more about donating, there are a number of online workshops, including:
Mental health pre- and post-transplant
African, Black and Caribbean perspectives on living organ donation
Be encouraged and inspired to find your living donor, or become a living donor!
Let’s Talk About
We've been having a number of conversations recently on My PKD that you may want to join or follow!
How do you deal with immunosuppression after transplant?
Have you had any side effects from peritoneal dialysis?
How do you manage the many side effects and symptoms of PKD?
Not a member of My PKD yet? Join here.
Eating Out? Eat Smart!
Craving a break from cooking?
Eating out can be tricky when you have PKD, but it doesn’t have to be. You can still stay on track with these helpful tips.
In this month’s blog, registered dietician and certified diabetes educator Emily Campbell shares smart strategies to help you navigate restaurant meals and fast food with confidence!
Bonus! Printable Handout
Having trouble remembering all the great tips from Emily's blog, above, when you need them most?
Download this concise, printable handout from My PKD, tuck it into a pocket or bag, and consult it before you place your order.
Not a member of My PKD? Join here.
Late-Stage PKD Peer Support
Tue 16 Sep 2025 @ 12:00pm ET
Our monthly PKD Mind Matters chats have become a lifeline for late-stage PKD patients across the continent.
Join us for September's meeting, where therapist Joy Pekar will provide her compassionate leadership.
Events for All on My PKD
Here's a sampling of upcoming event listings on My PKD - your "one stop shop" for anything PKD-, kidney-, or transplant-related.
The next Transplant Ambassador Program (TAP) webinar, on mental health before and after transplant.
September's PKD Peer Support Meeting hosted by the Kidney Foundation of Canada
October's PKD Mind Matters Chat for Late-Stage PKD