Stories

Brenda Conway, Fall River NS

I was diagnosed with PKD in 2003 at the age of 33. My diagnosis was a shock as I didn’t know of any family members being affected. I reached out to my father’s family in BC, who we had never met, and discovered that my cousin had been diagnosed around the same...

Cheri Barton, Vankleek Hill ON

I am 49 years old and I was diagnosed with PKD after our youngest of 3 children was born. I had never heard of PKD before my diagnosis. My parents don’t have it so I mutated the gene. When our girls got older, we had them tested by ultrasounds and...

Theresa Gray-Gunn, Barrie ON

My name is Theresa Gray-Gunn. In 1968, my Dad passed away from a brain aneurysm. My Mom was brave enough to donate his body to science for research and that is when they discovered that his aneurysm was caused by PKD...

Mark Nicastro, Chippawa ON

Helping to raise PKD awareness is an important and sensitive topic for me, based on how I have seen this often fatal disease devastate many people’s lives. My sister-in-law’s father suffered from PKD and waited on a transplant list for several years without ever finding a match. It is believed...

Jan Robertson, Newmarket ON

Thirty-seven years ago, I received the diagnosis that I had polycystic kidney disease and my life changed instantly that day. I had no idea that I was ill, let alone had a chronic kidney disease. I did not know anything about PKD or anyone that was affected by it. For...

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