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My name is Sonia Chies and I lost my mom in 2014 to PKD. As far as we know, no one on her side of the family had the disease. Mom and Dad supported others on dialysis and worked very hard in the community to donate money to research. Mom's dream was to find a cure by the time her grandchildren were older and I want to make her dream come true. I am now carrying her torch by volunteering as the Chapter Coordinator for Edmonton and I plan to dedicate the rest of my life to finding a cure for this complex disease.
The Edmonton Chapter started in August of 2017. We organize educational meetings to attract members and spread awareness. From there, with the help of more volunteers, I would like to grow the chapter so that we can be an excellent source of education, support and awareness for those who are affected by PKD. I look forward to creating some fun activities within Edmonton to raise money so we can support local research.
Anyone that would like to join our chapter can look forward to formulating some wonderful friendships, as we help support those with PKD and their families.
PKD Foundation of Canada Chapters are led by volunteers who want to make a difference in the fight to end PKD! Contact us today to find out how you can get involved with the Edmonton Chapter. Stay connected with us on Facebook.