November 21, 2022

November 2022 PKD e-News

Welcome to the PKD Foundation of Canada's November e-News! We have provided information important to helping you take action in your journey with PKD.

To view the e-News in French click here!


The last of our PKD Summit virtual events will be held on November 23rd & 24th, from 6:30 pm - 9:00 pm EST. These events are an opportunity for the PKD medical community, renal healthcare professionals, PKD patients, their families and loved ones to connect and hear presentations from top Canadian and International Key Opinion Leaders in the field of PKD. We hope you can join us!

Visit to see the full list of topics and to register today!

The GiveLifeUHN Travel & Accommodation Fund tops up government support with in-kind flights, ground transportation and hotel stays for living kidney and living liver donors, and accompanying caregivers, who must travel to the Ajmera Transplant Centre in Toronto for medical appointments and surgery.

This webinar will review Hope Air supports for people in need of medical care away from home and the application process for the GiveLifeUHN Travel & Accommodation Fund. Learn more and register, here!

Wondering about medical cannabis for kidney disease pain & discomfort? BC Renal has a newly developed Q&A patient guide to help you make an informed decision.

To learn more, click here!


GivingTuesday is a day dedicated to giving. In a year unlike any other, the nonprofit community needs your help more than ever. Due in part to pandemic and inflation financial strains, 23% of Canadians said that they donated less in this year, even as demand on charities increased.

We rely on the support of our generous donors to keep our services free. This #GivingTuesday, please consider making a donation to the PKD Foundation of Canada. Your support will help strengthen our programs of research, education, support, awareness and advocacy, and improve the lives of thousands of Canadians living with this disease. 

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As we return to in-person educational and support meetings in Spring of 2023, we are in need of meeting volunteers! We also have a number of Chapter Coordinator positions open in Vancouver, Edmonton, Calgary, and Ottawa.

If you are interested in getting involved, please contact us!

Do you have an old car taking up space on your property? Working on our behalf, Donate-a-Car Canada will accept your vehicle for donation -- running, or not! Old or new!

Donate-a-Car Canada will facilitate all aspects of your car donation from the pick up to the final sale, ensuring that your vehicle will be sold for the highest sale outcome possible. They will then forward the net proceeds on to us here at PKD Foundation of Canada and we will send you a tax receipt!

Visit to find out more about our partnership with Donate-A-Car!


The Great Actions Leave a Mark campaign, launched by University Hospital Network’s Ajmera Transplant Centre in Toronto and The Centre for Living Organ Donation, shares personal stories of organ recipients and living donors across Canada to help start conversations about living donation. The campaign shines a light on the impact of living organ donation and provides a platform for people to share their experiences along the path to living donation.

To learn more about the Great Action Leave a Mark campaign, click here!

Rob Hildebrand, a South Jersey Phillies fan misses Game 3 of the World Series to donate a kidney to his father-in-law who is affected PKD.

"While most of us would drop just about anything for the rescheduled game on Tuesday – Rob had a much bigger responsibility." Read the full story here!

In honour of National Pain Awareness Week (Nov. 6th-12th), we're revisiting a 2021 episode of Living Transplant episode, "Pain Management and Transplant." Courtney and Brittany are joined by Dr. Hance Clarke, Director of Pain Services and Medical Director of the Pain Research Unit at Toronto General Hospital. Dr. Clarke walks our hosts through his journey to pain medicine, the difference between acute pain services and transitional pain services, and the interaction between CBD, THC, and anti-rejection medications. For more information, visit UHN's Living Transplant Podcast.