ADPKD is the most common genetic form of kidney failure. Patients with ADPKD can have issues in other organs beyond the kidney. Dilation of blood vessels in the brain, brain aneurysms, are more common in patients with ADPKD and can result in neurological damage. Researchers at the University of Maryland are conducting a research study to identify genetic factors associated with brain aneurysm formation in ADPKD patients.

In order to qualify, you must meet the following:  

• Confirmed ADPKD diagnosis
• Confirmed brain aneurysm 
• 18 years old or older 

You don't need to travel to participate. Instead, you'll be asked to complete:

• 10-15 minute phone interview to provide personal and family medical history. Staff might request permission to obtain past medical records.
• Saliva or blood sample collection (completed locally and delivered to Yale Research Lab by FedEx—free of charge)

For more information, please complete this simple survey. A member of the study team will contact you. 

TAKE THE SURVEY

This survey link is HIPAA compliant.

If you're interested in participating or want to learn more about the study, please contact the study's team:

Terry Watnick, M.D.
(410) 706-5803
[email protected]

Melissa Shaw, Project Coordinator
(203) 737-8043
[email protected]
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