March 08, 2024

Talking with your adult children about your PKD diagnosis

Talking_about_PKD.pngIntroducing our new patient education resource: Having a Conversation with Your Adult Children about Your PKD Diagnosis.

This comprehensive, printable PDF includes a wealth of content, such as:

  • How to plan to have a conversation with your adult children about your recent PKD diagnosis
  • Anticipating possible reactions, and suggestions for how to respond in a helpful way
  • Common concerns that your family may have about your new diagnosis
  • A sample script to help you open the conversation
  • Some information about PKD and how to manage your disease
  • Some suggestions for managing your mental health with PKD
  • Things to consider before pursuing genetic testing

We hope that you find this resource helpful, and welcome your feedback and questions.

Click here to view the PDF.

We've also adapted content from this booklet to created resources to support all kinds of PKD conversations with your family, like this blog on how to plan for a family PKD conversation.