Many children’s hospitals typically have social workers assigned to kidney and liver patients that can help identify resources in your area and assist with the paperwork. Make sure to keep copies of all tests administered; many parents find it helpful to keep a large binder to organize records of blood tests, sonogram reports and doctors letters for future reference. This can also help provide additional information when applying for provincial or federal assistance, if required. The PKD Foundation of Canada’s local chapters can also provide additional support through chapter meetings and online resources for those afflicted by ARPKD. Click here to find your local chapter.