Advocacy Campaign

Share your story

Voices of PKD is a collection of stories, testimonies and photos that tell the story of PKD through the eyes of the PKD community, and help decision-makers better understanding life with PKD.

You can help give your voice to a widely unknown disease by sharing your story through the link below. Your experiences can paint a powerful picture of what it’s like to live with PKD and help others to know they are not alone.