August 31, 2021

August 2021 PKD e-News



Welcome to the PKD Foundation of Canada's August e-News! We have provided information important to helping you take action in your journey with PKD.


The PKD Foundation of Canada is proud to be hosting it's first Virtual PKD Summit this September! The summit will consist of 3 half days filled with educational events catered towards PKD patients and their loved ones on September 3rd, 10th and 17th. Visit to register, and view both agendas and speakers.

If you have questions regarding the PKD Summit or specific topics, please feel free to send us a direct message on social media or email us!

If you have questions but are not able to join us, send them our way and we’ll make sure they get asked in your absence. Following the Summit, recordings of the virtual events will be available online at

"Previous studies have reported the beneficial effects of chronic exercise on chronic kidney disease. However, the effects of chronic exercise have not been fully examined in PKD patients or models."

Read more about the effects of chronic exercise on the progression of PKD were investigated in a polycystic kidney (PCK) rat model here.

BC Renal, in partnership with BC’s Kidney Care Clinics, invites you and your family/friends to join them for an upcoming webinar. This presentation, lead by Dan Martinusen, Provincial Director of Pharmacy, BC Renal will discuss the following:
  • If medications can slow the progression of kidney disease
  • Common medications used to help the kidneys
  • Side effects and more.
To register, click here!

2021 Walk to END PKD registration is NOW OPEN! Like last year, we have made the decision to keep our signature fundraising event a virtual fundraising celebration - taking place on SUNDAY, SEPTEMBER 26th.

Join us, as we take the path less traveled and continue to move forward in the fight to end PKD! #ACureIsOurFinishLine! To learn more and register today visit!

My name is Clayton and I am a 23 year-old Paramedic living in Alberta. March of 2020 I lost my father, Pete Rafuse to PKD. PKD is an illness my father lived with for the majority of his life without issue. His doctor’s care plan was to monitor and see what time would bring.

To read Clayton's full story and to share your own PKD story, visit

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!


Though PKD affects thousands in Canada and millions worldwide, many people have never heard of it. Together, we can change this! #PKDAwarenessDay (September 4th) is our day to raise awareness about this disease and the devastating impact it has on generation after generation. Learn more about how to get involved this PKD Awareness Day here!

The latest Living Transplant episode, "Pain Management and Transplant," features Dr. Hance Clarke, Director of Pain Services and Medical Director of the Pain Research Unit at Toronto General Hospital. Dr. Clarke walks our hosts through his journey to pain medicine, the difference between acute pain services and transitional pain services, and the interaction between CBD, THC, and anti-rejection medications. For more information visit UHN's Living Transplant Podcast.