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Hello everyone, my name is Nina Young and I am the Chapter Coordinator for the Corner Brook Chapter. My journey of PKD started at the very young age of 13, when I was diagnosed with PKD. At an age where I should have been thinking about friends, school and enjoying my childhood, I found myself to worried about my future, what it meant, and where I was headed. Before I was even diagnosed, I knew about PKD. My mom had it, along with every single one of my family members, except for one. I watched silently as each of my family members became sick and their life changed forever. So would mine. I grew up in fear of the unknowing and unfortunately, there was not much support or knowledge of this disease at that time.
Years later, my mom took gravely sick and I reached out to the PKD Foundation of Canada for help. They were wonderful in supplying the information needed, and helped me take a proactive approach to my diagnosis.
Since then, I have dedicated my life to raising awareness of PKD and helping those who need more information and support. I am currently on dialysis, so I understand the constant struggle that patients go through. The Corner Brook Chapter’s future goal is to provide educational support and hold regular meetings, solely to help patients and families affected. We have some wonderful things planned for this year and I hope you will join us! Together we can make a difference in the goal to find a cure for this disease! A cure is our finish line!
PKD Foundation of Canada Chapters are led by volunteers who want to make a difference in the fight to end PKD! Contact us today to find out how you can get involved with the Corner Brook Chapter. Stay connected with us on Facebook.