December 14, 2020
December 2020 PKD e-News
December 2020
Greetings!
Welcome to the PKD Foundation of Canada's December e-News! We have provided information important to helping you take action in your journey with PKD.
Learn
New Study Findings: ADPKD Does Not Significantly Alter Major COVID-19 Outcomes Among Veterans
This year, Dr. Xiangqin Cui, from the Rollins School of Public Health at Emory University (Atlanta, GA), has been studying the risk factor of ADPKD and severe COVID-19 illnesses. "Chronic kidney disease (CKD), as well as its common causes (e.g., diabetes and obesity), are recognized risk factors for severe COVID-19 illness. To explore whether the most common inherited cause of CKD, autosomal dominant polycystic kidney disease (ADPKD), is also an independent risk factor, we studied data from the VA health system and the VA COVID-19-shared resources (e.g., ICD codes, demographics, pre-existing conditions, pre-testing symptoms, and post-testing outcomes)."
You can find Dr. Xiangqin Cui's preliminary findings in preprint (not yet peer-reviewed) here!
New Living Transplant Podcast Episode: #DialysisLife
A new episode from the Centre for Living Organ Donation's podcast series, 'Living Transplant' is out now! Claudia Morgan, living donor kidney transplant recipient and #PKDwarrior talks #dialysislife, pushing out of her comfort zone to find a living donor, and what it's like to go 'viral.' 'Living Transplant' is a podcast series with hosts Brittany Cole (Bedside Nurse, Ajmera Transplant Centre) and Courtney Mahrt (Communication, Centre for Living Organ Donation) as they explore transplantation through the perspectives of frontline staff, researchers, innovators, and transplant pioneers, as well as organ donation recipients, living organ donors, families and caregivers.
This podcast is available on iTunes, Spotify or wherever you listen to podcasts. New to podcasts? Head to livingorgandonation.ca to listen!
Upcoming Webinar: Home Hemodialysis: What? Why? How?
BC Renal is hosting an upcoming patient education webinar on February 4th at 5pm EST. The topic will be, 'Home Hemodialysis: What? Why? How?'
For more information and to register, view the event poster here!
PKD Health Note: Meatball and Veggie Soup Recipe
Looking for a PKD-friendly comfort food to combat those winter blues? Check out this meatball and veggie soup recipe from Chef Paigen Vondran of the Children's Hospital in Philadelphia!Meatball and Veggie Soup Recipe
Awareness
In The News: One Couple, Two Kidneys, Lives Intertwined
“Suzanne and Michel LaBrosse plan to celebrate their milestone 20th anniversary on Monday with a bit more bubbly than other years. Champagne is a tradition for the couple every December 7th, though it isn’t the date they exchanged wedding vows 42 years ago. It’s the date that Michel donated one of his kidneys to his wife.”
Read about Suzanne’s PKD journey here!
Read about Suzanne’s PKD journey here!
Planning For a Safe Holiday Season
"Many parents and caregivers are wondering what to do about the holidays this year. Nobody wants to disappoint their kids, especially in the midst of so many other losses and disappointments. So how can we prepare to follow public health guidelines for a safer celebration without dashing holiday spirits?"The Kelty Mental Health Resource Centre has provided some tips for families for keeping the holidays bright while staying safe. Read the full article here!
Support
Virtual Walk to END PKD Campaign Raises Over $160,000 in 2020!
This past September marked another highly successful Walk to END PKD campaign - our signature fundraising event! Despite the challenges that 2020 threw at us, we came together virtually from all across Canada to raise over $160,000 to #endPKD! This is amazing accomplishment and without your support, this would not have been possible.
These funds will strengthen our mission to improve programs of research, advocacy, education and awareness, while also giving hope to the 66,000 Canadians and 12.5 million worldwide living with PKD and their loved ones.
It was truly amazing to see all of your walk photos from hometowns across the nation. You can check out more pictures from the Walk to END PKD events on our Facebook page here!
These funds will strengthen our mission to improve programs of research, advocacy, education and awareness, while also giving hope to the 66,000 Canadians and 12.5 million worldwide living with PKD and their loved ones.
It was truly amazing to see all of your walk photos from hometowns across the nation. You can check out more pictures from the Walk to END PKD events on our Facebook page here!
Send Your Loved One a PKD Holiday Card This Year!
Friends, family and loved ones on your holiday shopping list this year may appreciate a donation made to the PKDFOC in their name, rather than receiving a tangible gift.When making your online donation, simply provide your honouree's contact information to ensure they receive a card from us letting them know a gift has been made in their honour.
Make your secure online donation here!
Have You Made Your Tax-Deductible Charitable Donation?
Donate by December 31st to receive a charitable tax receipt for your 2020 return! Tax incentives can be up to 53% of your charitable donation in Canada, depending on your province. Take advantage of these tax benefits by helping the PKD Foundation of Canada continue to provide support and services to those affected by PKD!Turn Your Old Car Into Support for the PKD Community!
Do you have an old vehicle taking up space on your property? Visit www.endPKD.ca/donate to find out more about our partnership with Donate-A-Car!
Your donation will directly support the programs and services of the PKD Foundation of Canada, and will have a positive impact on the lives of those living with PKD.
Help People SEE ADPKD: Share Your Story Today!
Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.
Help give a voice to a widely unknown disease by sharing your story here.
You can read some of our Voices of PKD here!
Help give a voice to a widely unknown disease by sharing your story here.
You can read some of our Voices of PKD here!
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