January 31, 2022
January PKD e-News
Greetings!
Welcome to the PKD Foundation of Canada's January e-News! We have provided information important to helping you take action in your journey with PKD.
To view the e-News in French click here!
Learn
When: Tuesday, February 1st at 1:00 pm EST
If you or a loved one are considering becoming a living kidney donor and have questions about how to become a donor, the assessment process and the recovery process, this interactive webinar session may help.
Speakers will provide an overview of the Living Donor Kidney Program, information on the assessment process for living kidney donors and an opportunity for frequently asked questions and answers. Register here!
When: Friday, March 4th at 11:30 am (PST)
Why consider peritoneal dialysis? What is it? What can I expect? What support is available? Registered Nurses who specialize in the area of peritoneal dialysis will lead the presentation. Also speaking will be a patient(s) who has lived experience with peritoneal dialysis. Be sure to pre-register here!
Building on previous findings that eating less slowed cyst growth in preclinical rodent studies, this study – partially funded by the PKD Foundation (USA) – explored calorie restriction and intermittent fasting among overweight or obese patients with ADPKD.
Read the full study here to understand potential weight loss benefits for patients with ADPKD.
"Researchers from the University of Saskatchewan and St. Paul’s Hospital in Saskatoon used the Canadian Light Source at USask to help improve health outcomes for patients on dialysis."
Read more about how scientists developed new coating to protect kidney failure patients here.
Read more about how scientists developed new coating to protect kidney failure patients here.
"It is normal to be feeling increased levels of stress and anxiety due to the ongoing COVID-19 pandemic. As social gathering restrictions and economic shutdowns have remained in place far longer than governments first anticipated, we understand that the activities and coping strategies you relied on to get through the past year may not be working as well as they used to. If you’ve been getting by but don’t feel like things are getting better, try incorporating some of the coping tools on CAMH's site into your routine."
The thought of Having Your Donor Find YOU! sounds like an unusual approach to living kidney donation, but this is what actually happens. By spreading the word about your need, Your Donor Finds YOU! Visit endpkd.ca/findyourlivingdonor to get started today!
AwarenesS
“My name is Lisa Werner. My twin sister and I were born with polycystic kidney and liver disease (PKD1), a genetic disorder, but I wasn’t diagnosed until the age of 29. I received a kidney and liver transplant on November 16, 2020. The liver team removed my 35 pound liver, which was one of the largest livers they had ever seen.”Click here to read Lisa’s full story and to share your own PKD story!
Check out this amazing story of 12 Americans creating a donor chain across 6 states! A shining example on the power of organ donation!
"When he got on a nationwide transplant list and was ready for the kidney to be hundreds of miles away, inside a total stranger, 52-year-old Kaye never imagined that he had been right there, next to his perfect match for years."
Read the full story here!
Read the full story here!
Support
Do you have an old car taking up space on your property? Working on our behalf, Donate-a-Car Canada will accept your vehicle for donation -- running, or not! Old or new!
Donate-a-Car Canada will facilitate all aspects of your car donation from the pick up to the final sale, ensuring that your vehicle will be sold for the highest sale outcome possible. They will then forward the net proceeds on to us here at PKD Foundation of Canada and we will send you a tax receipt!
Visit endpkd.ca/donate_a_car to find out more about our partnership with Donate-A-Car!
Donate-a-Car Canada will facilitate all aspects of your car donation from the pick up to the final sale, ensuring that your vehicle will be sold for the highest sale outcome possible. They will then forward the net proceeds on to us here at PKD Foundation of Canada and we will send you a tax receipt!
Visit endpkd.ca/donate_a_car to find out more about our partnership with Donate-A-Car!
The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community, driving vital programs around the world. They are made up of groups of volunteers – PKD patients, family members and friends just like you!
We are looking for volunteers for 2022! If you are interested, please email us at [email protected].
Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.
Help give a voice to a widely unknown disease by sharing your story here.
You can read some of our Voices of PKD here!
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